Parental decision-making and acceptance of newborn bloodspot screening: an exploratory study.

<h4>Objective</h4>Newborn bloodspot screening is an internationally established public health measure. Despite this, there is a paucity of information relating to the decision-making process that parents go through when accepting newborn screening. This is important as screening panels a...

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Autores principales:	Stuart G Nicholls, Kevin W Southern
Formato:	article
Lenguaje:	EN
Publicado:	Public Library of Science (PLoS) 2013
Materias:	Medicine R Science Q
Acceso en línea:	https://doaj.org/article/ef791228d05d416fb6a102bfbb03040e
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spelling	oai:doaj.org-article:ef791228d05d416fb6a102bfbb03040e2021-11-18T08:47:15ZParental decision-making and acceptance of newborn bloodspot screening: an exploratory study.1932-620310.1371/journal.pone.0079441https://doaj.org/article/ef791228d05d416fb6a102bfbb03040e2013-01-01T00:00:00Zhttps://www.ncbi.nlm.nih.gov/pmc/articles/pmid/24265771/?tool=EBIhttps://doaj.org/toc/1932-6203<h4>Objective</h4>Newborn bloodspot screening is an internationally established public health measure. Despite this, there is a paucity of information relating to the decision-making process that parents go through when accepting newborn screening. This is important as screening panels are expanding; potentially leading to an increasing amount of complex information. This study sought to understand the factors that influence parental decisions and roles they play in the decision-making process.<h4>Patients and methods</h4>Qualitative thematic evaluation of semi structured interviews with parents whose children had recently undergone newborn screening in the Merseyside and Cheshire region of England, UK.<h4>Results</h4>Eighteen interviews with first time parents (n = 12) and those with previous children (n = 6). Seven factors were identified as being either explicitly or implicitly related to parental decision-making: Experience, Attitudes to medicine, Information-seeking behaviour, Perceived knowledge, Attitudes to screening, and Perceived choice, all of which ultimately impact on Perceived decisional quality.<h4>Conclusions</h4>These results indicate that while content is important, other contextual factors such as personal experience, perceived choice, and general attitudes toward medicine, are also highly influential. In particular, relationships with key healthcare professionals are central to information collection, attitudes toward screening, and the level of deliberation that is invested in decisions to accept newborn bloodspot screening.Stuart G NichollsKevin W SouthernPublic Library of Science (PLoS)articleMedicineRScienceQENPLoS ONE, Vol 8, Iss 11, p e79441 (2013)
institution	DOAJ
collection	DOAJ
language	EN
topic	Medicine R Science Q
spellingShingle	Medicine R Science Q Stuart G Nicholls Kevin W Southern Parental decision-making and acceptance of newborn bloodspot screening: an exploratory study.
description	<h4>Objective</h4>Newborn bloodspot screening is an internationally established public health measure. Despite this, there is a paucity of information relating to the decision-making process that parents go through when accepting newborn screening. This is important as screening panels are expanding; potentially leading to an increasing amount of complex information. This study sought to understand the factors that influence parental decisions and roles they play in the decision-making process.<h4>Patients and methods</h4>Qualitative thematic evaluation of semi structured interviews with parents whose children had recently undergone newborn screening in the Merseyside and Cheshire region of England, UK.<h4>Results</h4>Eighteen interviews with first time parents (n = 12) and those with previous children (n = 6). Seven factors were identified as being either explicitly or implicitly related to parental decision-making: Experience, Attitudes to medicine, Information-seeking behaviour, Perceived knowledge, Attitudes to screening, and Perceived choice, all of which ultimately impact on Perceived decisional quality.<h4>Conclusions</h4>These results indicate that while content is important, other contextual factors such as personal experience, perceived choice, and general attitudes toward medicine, are also highly influential. In particular, relationships with key healthcare professionals are central to information collection, attitudes toward screening, and the level of deliberation that is invested in decisions to accept newborn bloodspot screening.
format	article
author	Stuart G Nicholls Kevin W Southern
author_facet	Stuart G Nicholls Kevin W Southern
author_sort	Stuart G Nicholls
title	Parental decision-making and acceptance of newborn bloodspot screening: an exploratory study.
title_short	Parental decision-making and acceptance of newborn bloodspot screening: an exploratory study.
title_full	Parental decision-making and acceptance of newborn bloodspot screening: an exploratory study.
title_fullStr	Parental decision-making and acceptance of newborn bloodspot screening: an exploratory study.
title_full_unstemmed	Parental decision-making and acceptance of newborn bloodspot screening: an exploratory study.
title_sort	parental decision-making and acceptance of newborn bloodspot screening: an exploratory study.
publisher	Public Library of Science (PLoS)
publishDate	2013
url	https://doaj.org/article/ef791228d05d416fb6a102bfbb03040e
work_keys_str_mv	AT stuartgnicholls parentaldecisionmakingandacceptanceofnewbornbloodspotscreeninganexploratorystudy AT kevinwsouthern parentaldecisionmakingandacceptanceofnewbornbloodspotscreeninganexploratorystudy
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Parental decision-making and acceptance of newborn bloodspot screening: an exploratory study.

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