Perspectives of older people living in long-term care facilities and of their family members toward advance care planning discussions: a systematic review and thematic synthesis

Veronica Mignani,1 Francesca Ingravallo,1 Elena Mariani,2 Rabih Chattat2 1Department of Medical and Surgical Sciences, University of Bologna, Via Irnerio, Bologna, Italy; 2Department of Psychology, University of Bologna, Viale Berti Pichat, Bologna, Italy Objective: We aimed to search and synthesi...

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Autores principales:	Mignani V, Ingravallo F, Mariani E, Chattat R
Formato:	article
Lenguaje:	EN
Publicado:	Dove Medical Press 2017
Materias:	Advance care planning frail elderly caregivers residential facilities qualitative research. Geriatrics RC952-954.6
Acceso en línea:	https://doaj.org/article/f0251fc18c43472c955d2ae9db9a08f9
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spelling	oai:doaj.org-article:f0251fc18c43472c955d2ae9db9a08f92021-12-02T06:56:07ZPerspectives of older people living in long-term care facilities and of their family members toward advance care planning discussions: a systematic review and thematic synthesis1178-1998https://doaj.org/article/f0251fc18c43472c955d2ae9db9a08f92017-03-01T00:00:00Zhttps://www.dovepress.com/perspectives-of-older-people-living-in-long-term-care-facilities-and-o-peer-reviewed-article-CIAhttps://doaj.org/toc/1178-1998Veronica Mignani,1 Francesca Ingravallo,1 Elena Mariani,2 Rabih Chattat2 1Department of Medical and Surgical Sciences, University of Bologna, Via Irnerio, Bologna, Italy; 2Department of Psychology, University of Bologna, Viale Berti Pichat, Bologna, Italy Objective: We aimed to search and synthesize qualitative studies exploring the perspectives of older people living in long-term care facilities and of their family members about advance care planning (ACP) discussions. Methods: The enhancing transparency in reporting the synthesis of qualitative research (ENTREQ) framework was used to guide the review and report its results. PubMed, CINAHL, and PsycINFO were searched for studies published between January 2000 and November 2015. All included studies were assessed for comprehensiveness of reporting, and a thematic synthesis of their results was performed. Results: The nine included studies differed in terms of qualitative method used, comprehensiveness of reporting, and geographical origin. The thematic synthesis led to the identification of four main themes: 1) plans already made; 2) end-of-life care and decision-making; 3) opinions and attitudes toward ACP; and 4) how, when, about what, and with whom to do ACP. Conclusion: Despite their willingness to be involved in a shared decision-making process, older residents and their families still have little experience with ACP. Practical implications: In view of implementing ACP for elders living in long-term care facilities, it would be important to rethink ACP and also to incorporate their nonmedical preferences, according to their own priorities. Keywords: advance care planning, frail elderly, caregivers, residential facilities, qualitative researchMignani VIngravallo FMariani EChattat RDove Medical PressarticleAdvance care planningfrail elderlycaregiversresidential facilitiesqualitative research.GeriatricsRC952-954.6ENClinical Interventions in Aging, Vol Volume 12, Pp 475-484 (2017)
institution	DOAJ
collection	DOAJ
language	EN
topic	Advance care planning frail elderly caregivers residential facilities qualitative research. Geriatrics RC952-954.6
spellingShingle	Advance care planning frail elderly caregivers residential facilities qualitative research. Geriatrics RC952-954.6 Mignani V Ingravallo F Mariani E Chattat R Perspectives of older people living in long-term care facilities and of their family members toward advance care planning discussions: a systematic review and thematic synthesis
description	Veronica Mignani,1 Francesca Ingravallo,1 Elena Mariani,2 Rabih Chattat2 1Department of Medical and Surgical Sciences, University of Bologna, Via Irnerio, Bologna, Italy; 2Department of Psychology, University of Bologna, Viale Berti Pichat, Bologna, Italy Objective: We aimed to search and synthesize qualitative studies exploring the perspectives of older people living in long-term care facilities and of their family members about advance care planning (ACP) discussions. Methods: The enhancing transparency in reporting the synthesis of qualitative research (ENTREQ) framework was used to guide the review and report its results. PubMed, CINAHL, and PsycINFO were searched for studies published between January 2000 and November 2015. All included studies were assessed for comprehensiveness of reporting, and a thematic synthesis of their results was performed. Results: The nine included studies differed in terms of qualitative method used, comprehensiveness of reporting, and geographical origin. The thematic synthesis led to the identification of four main themes: 1) plans already made; 2) end-of-life care and decision-making; 3) opinions and attitudes toward ACP; and 4) how, when, about what, and with whom to do ACP. Conclusion: Despite their willingness to be involved in a shared decision-making process, older residents and their families still have little experience with ACP. Practical implications: In view of implementing ACP for elders living in long-term care facilities, it would be important to rethink ACP and also to incorporate their nonmedical preferences, according to their own priorities. Keywords: advance care planning, frail elderly, caregivers, residential facilities, qualitative research
format	article
author	Mignani V Ingravallo F Mariani E Chattat R
author_facet	Mignani V Ingravallo F Mariani E Chattat R
author_sort	Mignani V
title	Perspectives of older people living in long-term care facilities and of their family members toward advance care planning discussions: a systematic review and thematic synthesis
title_short	Perspectives of older people living in long-term care facilities and of their family members toward advance care planning discussions: a systematic review and thematic synthesis
title_full	Perspectives of older people living in long-term care facilities and of their family members toward advance care planning discussions: a systematic review and thematic synthesis
title_fullStr	Perspectives of older people living in long-term care facilities and of their family members toward advance care planning discussions: a systematic review and thematic synthesis
title_full_unstemmed	Perspectives of older people living in long-term care facilities and of their family members toward advance care planning discussions: a systematic review and thematic synthesis
title_sort	perspectives of older people living in long-term care facilities and of their family members toward advance care planning discussions: a systematic review and thematic synthesis
publisher	Dove Medical Press
publishDate	2017
url	https://doaj.org/article/f0251fc18c43472c955d2ae9db9a08f9
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Perspectives of older people living in long-term care facilities and of their family members toward advance care planning discussions: a systematic review and thematic synthesis

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