Perspectives of healthcare providers, service users, and family members about mental illness stigma in primary care settings: A multi-site qualitative study of seven countries in Africa, Asia, and Europe

<h4>Background</h4> Stigma among healthcare providers is a barrier to the effective delivery of mental health services in primary care. Few studies have been conducted in primary care settings comparing the attitudes of healthcare providers and experiences of people with mental illness w...

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Autores principales: Mirja Koschorke, Nathalie Oexle, Uta Ouali, Anish V. Cherian, Vayankarappadam Deepika, Gurucharan Bhaskar Mendon, Dristy Gurung, Lucie Kondratova, Matyas Muller, Mariangela Lanfredi, Antonio Lasalvia, Andrea Bodrogi, Anna Nyulászi, Mario Tomasini, Rabih El Chammay, Racha Abi Hana, Yosra Zgueb, Fethi Nacef, Eva Heim, Anaïs Aeschlimann, Sally Souraya, Maria Milenova, Nadja van Ginneken, Graham Thornicroft, Brandon A. Kohrt
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spelling oai:doaj.org-article:f02dbc542be44a78a7b0b9966775efa02021-11-04T06:49:44ZPerspectives of healthcare providers, service users, and family members about mental illness stigma in primary care settings: A multi-site qualitative study of seven countries in Africa, Asia, and Europe1932-6203https://doaj.org/article/f02dbc542be44a78a7b0b9966775efa02021-01-01T00:00:00Zhttps://www.ncbi.nlm.nih.gov/pmc/articles/PMC8550394/?tool=EBIhttps://doaj.org/toc/1932-6203<h4>Background</h4> Stigma among healthcare providers is a barrier to the effective delivery of mental health services in primary care. Few studies have been conducted in primary care settings comparing the attitudes of healthcare providers and experiences of people with mental illness who are service users in those facilities. Such research is necessary across diverse global settings to characterize stigma and inform effective stigma reduction. <h4>Methods</h4> Qualitative research was conducted on mental illness stigma in primary care settings in one low-income country (Nepal), two lower-middle income countries (India, Tunisia), one upper-middle-income country (Lebanon), and three high-income countries (Czech Republic, Hungary, Italy). Qualitative interviews were conducted with 248 participants: 64 primary care providers, 11 primary care facility managers, 111 people with mental illness, and 60 family members of people with mental illness. Data were analyzed using framework analysis. <h4>Results</h4> Primary care providers endorsed some willingness to help persons with mental illness but reported not having appropriate training and supervision to deliver mental healthcare. They expressed that people with mental illness are aggressive and unpredictable. Some reported that mental illness is incurable, and mental healthcare is burdensome and leads to burnout. They preferred mental healthcare to be delivered by specialists. Service users did not report high levels of discrimination from primary care providers; however, they had limited expectations of support from primary care providers. Service users reported internalized stigma and discrimination from family and community members. Providers and service users reported unreliable psychiatric medication supply and lack of facilities for confidential consultations. Limitations of the study include conducting qualitative interviews in clinical settings and reliance on clinician-researchers in some sites to conduct interviews, which potentially biases respondents to present attitudes and experiences about primary care services in a positive manner. <h4>Conclusions</h4> Primary care providers’ willingness to interact with people with mental illness and receive more training presents an opportunity to address stigmatizing beliefs and stereotypes. This study also raises important methodological questions about the most appropriate strategies to accurately understand attitudes and experiences of people with mental illness. Recommendations are provided for future qualitative research about stigma, such as qualitative interviewing by non-clinical personnel, involving non-clinical staff for recruitment of participants, conducting interviews in non-clinical settings, and partnering with people with mental illness to facilitate qualitative data collection and analysis.Mirja KoschorkeNathalie OexleUta OualiAnish V. CherianVayankarappadam DeepikaGurucharan Bhaskar MendonDristy GurungLucie KondratovaMatyas MullerMariangela LanfrediAntonio LasalviaAndrea BodrogiAnna NyulásziMario TomasiniRabih El ChammayRacha Abi HanaYosra ZguebFethi NacefEva HeimAnaïs AeschlimannSally SourayaMaria MilenovaNadja van GinnekenGraham ThornicroftBrandon A. KohrtPublic Library of Science (PLoS)articleMedicineRScienceQENPLoS ONE, Vol 16, Iss 10 (2021)
institution DOAJ
collection DOAJ
language EN
topic Medicine
R
Science
Q
spellingShingle Medicine
R
Science
Q
Mirja Koschorke
Nathalie Oexle
Uta Ouali
Anish V. Cherian
Vayankarappadam Deepika
Gurucharan Bhaskar Mendon
Dristy Gurung
Lucie Kondratova
Matyas Muller
Mariangela Lanfredi
Antonio Lasalvia
Andrea Bodrogi
Anna Nyulászi
Mario Tomasini
Rabih El Chammay
Racha Abi Hana
Yosra Zgueb
Fethi Nacef
Eva Heim
Anaïs Aeschlimann
Sally Souraya
Maria Milenova
Nadja van Ginneken
Graham Thornicroft
Brandon A. Kohrt
Perspectives of healthcare providers, service users, and family members about mental illness stigma in primary care settings: A multi-site qualitative study of seven countries in Africa, Asia, and Europe
description <h4>Background</h4> Stigma among healthcare providers is a barrier to the effective delivery of mental health services in primary care. Few studies have been conducted in primary care settings comparing the attitudes of healthcare providers and experiences of people with mental illness who are service users in those facilities. Such research is necessary across diverse global settings to characterize stigma and inform effective stigma reduction. <h4>Methods</h4> Qualitative research was conducted on mental illness stigma in primary care settings in one low-income country (Nepal), two lower-middle income countries (India, Tunisia), one upper-middle-income country (Lebanon), and three high-income countries (Czech Republic, Hungary, Italy). Qualitative interviews were conducted with 248 participants: 64 primary care providers, 11 primary care facility managers, 111 people with mental illness, and 60 family members of people with mental illness. Data were analyzed using framework analysis. <h4>Results</h4> Primary care providers endorsed some willingness to help persons with mental illness but reported not having appropriate training and supervision to deliver mental healthcare. They expressed that people with mental illness are aggressive and unpredictable. Some reported that mental illness is incurable, and mental healthcare is burdensome and leads to burnout. They preferred mental healthcare to be delivered by specialists. Service users did not report high levels of discrimination from primary care providers; however, they had limited expectations of support from primary care providers. Service users reported internalized stigma and discrimination from family and community members. Providers and service users reported unreliable psychiatric medication supply and lack of facilities for confidential consultations. Limitations of the study include conducting qualitative interviews in clinical settings and reliance on clinician-researchers in some sites to conduct interviews, which potentially biases respondents to present attitudes and experiences about primary care services in a positive manner. <h4>Conclusions</h4> Primary care providers’ willingness to interact with people with mental illness and receive more training presents an opportunity to address stigmatizing beliefs and stereotypes. This study also raises important methodological questions about the most appropriate strategies to accurately understand attitudes and experiences of people with mental illness. Recommendations are provided for future qualitative research about stigma, such as qualitative interviewing by non-clinical personnel, involving non-clinical staff for recruitment of participants, conducting interviews in non-clinical settings, and partnering with people with mental illness to facilitate qualitative data collection and analysis.
format article
author Mirja Koschorke
Nathalie Oexle
Uta Ouali
Anish V. Cherian
Vayankarappadam Deepika
Gurucharan Bhaskar Mendon
Dristy Gurung
Lucie Kondratova
Matyas Muller
Mariangela Lanfredi
Antonio Lasalvia
Andrea Bodrogi
Anna Nyulászi
Mario Tomasini
Rabih El Chammay
Racha Abi Hana
Yosra Zgueb
Fethi Nacef
Eva Heim
Anaïs Aeschlimann
Sally Souraya
Maria Milenova
Nadja van Ginneken
Graham Thornicroft
Brandon A. Kohrt
author_facet Mirja Koschorke
Nathalie Oexle
Uta Ouali
Anish V. Cherian
Vayankarappadam Deepika
Gurucharan Bhaskar Mendon
Dristy Gurung
Lucie Kondratova
Matyas Muller
Mariangela Lanfredi
Antonio Lasalvia
Andrea Bodrogi
Anna Nyulászi
Mario Tomasini
Rabih El Chammay
Racha Abi Hana
Yosra Zgueb
Fethi Nacef
Eva Heim
Anaïs Aeschlimann
Sally Souraya
Maria Milenova
Nadja van Ginneken
Graham Thornicroft
Brandon A. Kohrt
author_sort Mirja Koschorke
title Perspectives of healthcare providers, service users, and family members about mental illness stigma in primary care settings: A multi-site qualitative study of seven countries in Africa, Asia, and Europe
title_short Perspectives of healthcare providers, service users, and family members about mental illness stigma in primary care settings: A multi-site qualitative study of seven countries in Africa, Asia, and Europe
title_full Perspectives of healthcare providers, service users, and family members about mental illness stigma in primary care settings: A multi-site qualitative study of seven countries in Africa, Asia, and Europe
title_fullStr Perspectives of healthcare providers, service users, and family members about mental illness stigma in primary care settings: A multi-site qualitative study of seven countries in Africa, Asia, and Europe
title_full_unstemmed Perspectives of healthcare providers, service users, and family members about mental illness stigma in primary care settings: A multi-site qualitative study of seven countries in Africa, Asia, and Europe
title_sort perspectives of healthcare providers, service users, and family members about mental illness stigma in primary care settings: a multi-site qualitative study of seven countries in africa, asia, and europe
publisher Public Library of Science (PLoS)
publishDate 2021
url https://doaj.org/article/f02dbc542be44a78a7b0b9966775efa0
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