Conceptual frameworks and degrees of patient engagement in the planning and designing of health services: A scoping review of qualitative studies

Increasingly, patients are being recognized as essential partners in the solutions to healthcare system problems. Patient engagement has been referred to as the “holy grail” and next “blockbuster drug” of health care because it may be revolutionary for transforming the design, delivery, and responsi...

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Autores principales:	Umair Majid, Anna Gagliardi
Formato:	article
Lenguaje:	EN
Publicado:	The Beryl Institute 2019
Materias:	patient engagement; patient and public involvement; patient experience; scoping review; organization and management; healthcare Medicine (General) R5-920 Public aspects of medicine RA1-1270
Acceso en línea:	https://doaj.org/article/f318e693c87246f2a976b2f82e9cb453
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spelling	oai:doaj.org-article:f318e693c87246f2a976b2f82e9cb4532021-11-15T04:28:53ZConceptual frameworks and degrees of patient engagement in the planning and designing of health services: A scoping review of qualitative studies2372-0247https://doaj.org/article/f318e693c87246f2a976b2f82e9cb4532019-11-01T00:00:00Zhttps://pxjournal.org/journal/vol6/iss3/11https://doaj.org/toc/2372-0247Increasingly, patients are being recognized as essential partners in the solutions to healthcare system problems. Patient engagement has been referred to as the “holy grail” and next “blockbuster drug” of health care because it may be revolutionary for transforming the design, delivery, and responsiveness of health services. Patients engage in a variety of healthcare activities, and there are multiple frameworks that depict the degrees of patient engagement in these activities. The literature also uses a variety of terms and concepts to depict the degrees of patient engagement. Moreover, meaningful patient engagement is a concept widely utilized in the literature without a clear definition. The conceptual boundaries and differences between degrees of engagement are unclear. This scoping review summarizes the descriptive characteristics, the degrees of engagement, and examines the terms used to depict meaningful engagement as conceptualized by studies on planning and designing of administrative or health services and interventions. The research questions for this study are: <em>What are the descriptive and study characteristics of studies where patients engage in planning and designing activities? What terms do studies use to depict meaningful patient engagement? </em>This review found a variety of terms used by the literature to depict meaningful engagement: collaboration, cooperation, co-production, active involvement, partnership, and consumer and peer leadership. This review also found that studies seldom use patient engagement frameworks to identify the degree of engagement. The implications of these findings are discussed in light of the literature on patient engagement and recommendations for future practice are provided. <strong>Experience Framework</strong> This article is associated with the Patient, Family & Community Engagement lens of The Beryl Institute Experience Framework. (<a href="http://bit.ly/ExperienceFramework">http://bit.ly/ExperienceFramework</a>) <ul> <li><a href="https://www.theberylinstitute.org/page/PXSEARCH#resource-list-all/?view_28_page=1&view_28_filters=%5B%7B%22field%22%3A%22field_38%22%2C%22operator%22%3A%22in%22%2C%22value%22%3A%5B%22PXJ%20Article%22%5D%7D%2C%7B%22field%22%3A%22field_20%22%2C%22operator%22%3A%22is%22%2C%22value%22%3A%5B%22%22%5D%7D%2C%7B%22field%22%3A%22field_40%22%2C%22operator%22%3A%22is%22%2C%22value%22%3A%5B%22%22%2C%22Patient%2C%20Family%20%26%20Community%20Engagement%22%5D%7D%2C%7B%22field%22%3A%22field_41%22%2C%22operator%22%3A%22is%22%2C%22value%22%3A%5B%22%22%5D%7D%5D">Access other PXJ articles</a> related to this lens.</li> <li><a href="https://www.theberylinstitute.org/page/Ecosystem-PatientFamilyCommunityEngagement">Access other resources</a> related to this lens.</li> </ul>Umair MajidAnna GagliardiThe Beryl Institutearticlepatient engagement; patient and public involvement; patient experience; scoping review; organization and management; healthcareMedicine (General)R5-920Public aspects of medicineRA1-1270ENPatient Experience Journal (2019)
institution	DOAJ
collection	DOAJ
language	EN
topic	patient engagement; patient and public involvement; patient experience; scoping review; organization and management; healthcare Medicine (General) R5-920 Public aspects of medicine RA1-1270
spellingShingle	patient engagement; patient and public involvement; patient experience; scoping review; organization and management; healthcare Medicine (General) R5-920 Public aspects of medicine RA1-1270 Umair Majid Anna Gagliardi Conceptual frameworks and degrees of patient engagement in the planning and designing of health services: A scoping review of qualitative studies
description	Increasingly, patients are being recognized as essential partners in the solutions to healthcare system problems. Patient engagement has been referred to as the “holy grail” and next “blockbuster drug” of health care because it may be revolutionary for transforming the design, delivery, and responsiveness of health services. Patients engage in a variety of healthcare activities, and there are multiple frameworks that depict the degrees of patient engagement in these activities. The literature also uses a variety of terms and concepts to depict the degrees of patient engagement. Moreover, meaningful patient engagement is a concept widely utilized in the literature without a clear definition. The conceptual boundaries and differences between degrees of engagement are unclear. This scoping review summarizes the descriptive characteristics, the degrees of engagement, and examines the terms used to depict meaningful engagement as conceptualized by studies on planning and designing of administrative or health services and interventions. The research questions for this study are: <em>What are the descriptive and study characteristics of studies where patients engage in planning and designing activities? What terms do studies use to depict meaningful patient engagement? </em>This review found a variety of terms used by the literature to depict meaningful engagement: collaboration, cooperation, co-production, active involvement, partnership, and consumer and peer leadership. This review also found that studies seldom use patient engagement frameworks to identify the degree of engagement. The implications of these findings are discussed in light of the literature on patient engagement and recommendations for future practice are provided. <strong>Experience Framework</strong> This article is associated with the Patient, Family & Community Engagement lens of The Beryl Institute Experience Framework. (<a href="http://bit.ly/ExperienceFramework">http://bit.ly/ExperienceFramework</a>) <ul> <li><a href="https://www.theberylinstitute.org/page/PXSEARCH#resource-list-all/?view_28_page=1&view_28_filters=%5B%7B%22field%22%3A%22field_38%22%2C%22operator%22%3A%22in%22%2C%22value%22%3A%5B%22PXJ%20Article%22%5D%7D%2C%7B%22field%22%3A%22field_20%22%2C%22operator%22%3A%22is%22%2C%22value%22%3A%5B%22%22%5D%7D%2C%7B%22field%22%3A%22field_40%22%2C%22operator%22%3A%22is%22%2C%22value%22%3A%5B%22%22%2C%22Patient%2C%20Family%20%26%20Community%20Engagement%22%5D%7D%2C%7B%22field%22%3A%22field_41%22%2C%22operator%22%3A%22is%22%2C%22value%22%3A%5B%22%22%5D%7D%5D">Access other PXJ articles</a> related to this lens.</li> <li><a href="https://www.theberylinstitute.org/page/Ecosystem-PatientFamilyCommunityEngagement">Access other resources</a> related to this lens.</li> </ul>
format	article
author	Umair Majid Anna Gagliardi
author_facet	Umair Majid Anna Gagliardi
author_sort	Umair Majid
title	Conceptual frameworks and degrees of patient engagement in the planning and designing of health services: A scoping review of qualitative studies
title_short	Conceptual frameworks and degrees of patient engagement in the planning and designing of health services: A scoping review of qualitative studies
title_full	Conceptual frameworks and degrees of patient engagement in the planning and designing of health services: A scoping review of qualitative studies
title_fullStr	Conceptual frameworks and degrees of patient engagement in the planning and designing of health services: A scoping review of qualitative studies
title_full_unstemmed	Conceptual frameworks and degrees of patient engagement in the planning and designing of health services: A scoping review of qualitative studies
title_sort	conceptual frameworks and degrees of patient engagement in the planning and designing of health services: a scoping review of qualitative studies
publisher	The Beryl Institute
publishDate	2019
url	https://doaj.org/article/f318e693c87246f2a976b2f82e9cb453
work_keys_str_mv	AT umairmajid conceptualframeworksanddegreesofpatientengagementintheplanninganddesigningofhealthservicesascopingreviewofqualitativestudies AT annagagliardi conceptualframeworksanddegreesofpatientengagementintheplanninganddesigningofhealthservicesascopingreviewofqualitativestudies
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Conceptual frameworks and degrees of patient engagement in the planning and designing of health services: A scoping review of qualitative studies

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