Patient-Reported Outcome Measures in Endometriosis

Patient Reported Outcome Measures (PROM) evoke measurements that allow capturing patients’ perspectives on their condition. In endometriosis care, physicians’ understanding of the effect of the disease and the treatment on patients is often poor. The use of PROMs in endometriosis clinical practice c...

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Autores principales:	Alba Nicolas-Boluda, Anne Oppenheimer, Jerome Bouaziz, Arnaud Fauconnier
Formato:	article
Lenguaje:	EN
Publicado:	MDPI AG 2021
Materias:	endometriosis patient reported outcome measures quality of life Medicine R
Acceso en línea:	https://doaj.org/article/f3f7205b96144249aaed110611b3e6f5
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spelling	oai:doaj.org-article:f3f7205b96144249aaed110611b3e6f52021-11-11T17:43:41ZPatient-Reported Outcome Measures in Endometriosis10.3390/jcm102151062077-0383https://doaj.org/article/f3f7205b96144249aaed110611b3e6f52021-10-01T00:00:00Zhttps://www.mdpi.com/2077-0383/10/21/5106https://doaj.org/toc/2077-0383Patient Reported Outcome Measures (PROM) evoke measurements that allow capturing patients’ perspectives on their condition. In endometriosis care, physicians’ understanding of the effect of the disease and the treatment on patients is often poor. The use of PROMs in endometriosis clinical practice can facilitate patient-provider communication and the implementation of patient-centered care, improve patients’ quality of life, as well as provide a tool for patients’ self-management of the disease. Today, PROMs are extensively used in research and clinical trials, however they are barely used in clinical practice. The development of digital tools facilitating capturing PROMs can contribute to their use by physicians in routine endometriosis care. However, all PROMs are not adapted to be used in routine care in the context of endometriosis. The objective of this study was to present a catalogue of available PROMs for routine endometriosis care and evaluate them according to selected criteria. To do so, we explored the different PROMs currently in the literature. Consequently, 48 PROM were identified as tools used to evaluate various dimensions of the impact of endometriosis on patients. The selected PROMs were evaluated for their potential to be used as a standard in clinical practice in endometriosis. The selected catalogue of PROMs is the starting point for the integration of digital tools to capture PROMs and the development of patient-centered dashboards to be used by patients and clinicians in endometriosis care and self-management to improve care processes, patient satisfaction, quality of life, and outcomes.Alba Nicolas-BoludaAnne OppenheimerJerome BouazizArnaud FauconnierMDPI AGarticleendometriosispatient reported outcome measuresquality of lifeMedicineRENJournal of Clinical Medicine, Vol 10, Iss 5106, p 5106 (2021)
institution	DOAJ
collection	DOAJ
language	EN
topic	endometriosis patient reported outcome measures quality of life Medicine R
spellingShingle	endometriosis patient reported outcome measures quality of life Medicine R Alba Nicolas-Boluda Anne Oppenheimer Jerome Bouaziz Arnaud Fauconnier Patient-Reported Outcome Measures in Endometriosis
description	Patient Reported Outcome Measures (PROM) evoke measurements that allow capturing patients’ perspectives on their condition. In endometriosis care, physicians’ understanding of the effect of the disease and the treatment on patients is often poor. The use of PROMs in endometriosis clinical practice can facilitate patient-provider communication and the implementation of patient-centered care, improve patients’ quality of life, as well as provide a tool for patients’ self-management of the disease. Today, PROMs are extensively used in research and clinical trials, however they are barely used in clinical practice. The development of digital tools facilitating capturing PROMs can contribute to their use by physicians in routine endometriosis care. However, all PROMs are not adapted to be used in routine care in the context of endometriosis. The objective of this study was to present a catalogue of available PROMs for routine endometriosis care and evaluate them according to selected criteria. To do so, we explored the different PROMs currently in the literature. Consequently, 48 PROM were identified as tools used to evaluate various dimensions of the impact of endometriosis on patients. The selected PROMs were evaluated for their potential to be used as a standard in clinical practice in endometriosis. The selected catalogue of PROMs is the starting point for the integration of digital tools to capture PROMs and the development of patient-centered dashboards to be used by patients and clinicians in endometriosis care and self-management to improve care processes, patient satisfaction, quality of life, and outcomes.
format	article
author	Alba Nicolas-Boluda Anne Oppenheimer Jerome Bouaziz Arnaud Fauconnier
author_facet	Alba Nicolas-Boluda Anne Oppenheimer Jerome Bouaziz Arnaud Fauconnier
author_sort	Alba Nicolas-Boluda
title	Patient-Reported Outcome Measures in Endometriosis
title_short	Patient-Reported Outcome Measures in Endometriosis
title_full	Patient-Reported Outcome Measures in Endometriosis
title_fullStr	Patient-Reported Outcome Measures in Endometriosis
title_full_unstemmed	Patient-Reported Outcome Measures in Endometriosis
title_sort	patient-reported outcome measures in endometriosis
publisher	MDPI AG
publishDate	2021
url	https://doaj.org/article/f3f7205b96144249aaed110611b3e6f5
work_keys_str_mv	AT albanicolasboluda patientreportedoutcomemeasuresinendometriosis AT anneoppenheimer patientreportedoutcomemeasuresinendometriosis AT jeromebouaziz patientreportedoutcomemeasuresinendometriosis AT arnaudfauconnier patientreportedoutcomemeasuresinendometriosis
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Patient-Reported Outcome Measures in Endometriosis

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