Parents of Children Diagnosed with Autism Spectrum Disorder: What Do They Expect and Experience from Preschools?

Gunilla Westman Andersson,1,2 Nanna Gillberg,3 Carmela Miniscalco4 1Department of Education and Special Education, Faculty of Education, University of Gothenburg, Gothenburg, Sweden; 2Gillberg Neuropsychiatry Centre, Sahlgrenska Academy, University of Gothenburg, Gothenburg, Sweden; 3Department of B...

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Autores principales: Westman Andersson G, Gillberg N, Miniscalco C
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Publicado: Dove Medical Press 2021
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spelling oai:doaj.org-article:f56549e9ca0c4ae28f641dc7717051532021-12-02T17:29:55ZParents of Children Diagnosed with Autism Spectrum Disorder: What Do They Expect and Experience from Preschools?1178-2021https://doaj.org/article/f56549e9ca0c4ae28f641dc7717051532021-09-01T00:00:00Zhttps://www.dovepress.com/parents-of-children-diagnosed-with-autism-spectrum-disorder-what-do-th-peer-reviewed-fulltext-article-NDThttps://doaj.org/toc/1178-2021Gunilla Westman Andersson,1,2 Nanna Gillberg,3 Carmela Miniscalco4 1Department of Education and Special Education, Faculty of Education, University of Gothenburg, Gothenburg, Sweden; 2Gillberg Neuropsychiatry Centre, Sahlgrenska Academy, University of Gothenburg, Gothenburg, Sweden; 3Department of Business Administration, School of Business, Economics and Law at the University of Gothenburg, Gothenburg, Sweden; 4Neuropsychiatric Department and Pediatric Speech and Language Pathology Department, Queen Silvia Children’s Hospital & Gillberg Neuropsychiatry Centre, University of Gothenburg, Gothenburg, SwedenCorrespondence: Gunilla Westman AnderssonDepartment of Education and Special Education, Box 300, Gothenburg, 40530, SwedenTel +46 31 342 5970Email gunilla.andersson@gu.seBackground: In Sweden, children diagnosed with autism spectrum disorders (ASD) as well as other children in need of special support, according to the law should be provided stimulation and support for their development in their preschools. Parents of children diagnosed with ASD have been shown to struggle to ensure the right to support for their child from society, including in preschool. This study reports parent expectations and experiences when having a child diagnosed with ASD in preschool.Methods: A questionnaire with 12 open-ended and 9 multiple-choice questions was completed by parents of 26 children (3 girls, 23 boys, mean age 4:3 years). The children had been diagnosed with ASD within the last year. The data were analyzed using a qualitative inductive approach with a content analysis of the open-ended questions.Findings and Conclusions: This study shows that parents expect competence and knowledge about ASD among preschool staff, including the principal. They need continuous dialogue between parents and the preschool staff and expect individualized support for their child. Concerns about their child in preschool frequently occurred.Keywords: autism spectrum disorder, children, parents, preschoolWestman Andersson GGillberg NMiniscalco CDove Medical Pressarticleautism spectrum disorderchildrenparentspreschoolNeurosciences. Biological psychiatry. NeuropsychiatryRC321-571Neurology. Diseases of the nervous systemRC346-429ENNeuropsychiatric Disease and Treatment, Vol Volume 17, Pp 3025-3037 (2021)
institution DOAJ
collection DOAJ
language EN
topic autism spectrum disorder
children
parents
preschool
Neurosciences. Biological psychiatry. Neuropsychiatry
RC321-571
Neurology. Diseases of the nervous system
RC346-429
spellingShingle autism spectrum disorder
children
parents
preschool
Neurosciences. Biological psychiatry. Neuropsychiatry
RC321-571
Neurology. Diseases of the nervous system
RC346-429
Westman Andersson G
Gillberg N
Miniscalco C
Parents of Children Diagnosed with Autism Spectrum Disorder: What Do They Expect and Experience from Preschools?
description Gunilla Westman Andersson,1,2 Nanna Gillberg,3 Carmela Miniscalco4 1Department of Education and Special Education, Faculty of Education, University of Gothenburg, Gothenburg, Sweden; 2Gillberg Neuropsychiatry Centre, Sahlgrenska Academy, University of Gothenburg, Gothenburg, Sweden; 3Department of Business Administration, School of Business, Economics and Law at the University of Gothenburg, Gothenburg, Sweden; 4Neuropsychiatric Department and Pediatric Speech and Language Pathology Department, Queen Silvia Children’s Hospital & Gillberg Neuropsychiatry Centre, University of Gothenburg, Gothenburg, SwedenCorrespondence: Gunilla Westman AnderssonDepartment of Education and Special Education, Box 300, Gothenburg, 40530, SwedenTel +46 31 342 5970Email gunilla.andersson@gu.seBackground: In Sweden, children diagnosed with autism spectrum disorders (ASD) as well as other children in need of special support, according to the law should be provided stimulation and support for their development in their preschools. Parents of children diagnosed with ASD have been shown to struggle to ensure the right to support for their child from society, including in preschool. This study reports parent expectations and experiences when having a child diagnosed with ASD in preschool.Methods: A questionnaire with 12 open-ended and 9 multiple-choice questions was completed by parents of 26 children (3 girls, 23 boys, mean age 4:3 years). The children had been diagnosed with ASD within the last year. The data were analyzed using a qualitative inductive approach with a content analysis of the open-ended questions.Findings and Conclusions: This study shows that parents expect competence and knowledge about ASD among preschool staff, including the principal. They need continuous dialogue between parents and the preschool staff and expect individualized support for their child. Concerns about their child in preschool frequently occurred.Keywords: autism spectrum disorder, children, parents, preschool
format article
author Westman Andersson G
Gillberg N
Miniscalco C
author_facet Westman Andersson G
Gillberg N
Miniscalco C
author_sort Westman Andersson G
title Parents of Children Diagnosed with Autism Spectrum Disorder: What Do They Expect and Experience from Preschools?
title_short Parents of Children Diagnosed with Autism Spectrum Disorder: What Do They Expect and Experience from Preschools?
title_full Parents of Children Diagnosed with Autism Spectrum Disorder: What Do They Expect and Experience from Preschools?
title_fullStr Parents of Children Diagnosed with Autism Spectrum Disorder: What Do They Expect and Experience from Preschools?
title_full_unstemmed Parents of Children Diagnosed with Autism Spectrum Disorder: What Do They Expect and Experience from Preschools?
title_sort parents of children diagnosed with autism spectrum disorder: what do they expect and experience from preschools?
publisher Dove Medical Press
publishDate 2021
url https://doaj.org/article/f56549e9ca0c4ae28f641dc771705153
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AT miniscalcoc parentsofchildrendiagnosedwithautismspectrumdisorderwhatdotheyexpectandexperiencefrompreschools
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