Chronic Disease Surveillance in Alberta’s Tomorrow Project using Administrative Health Data

Introduction Alberta's Tomorrow Project (ATP) is the largest population-based prospective cohort study of cancer and chronic diseases in Alberta, Canada. The ATP cohort data were primarily self-reported by participants on lifestyle behaviors and disease risk factors at the enrollment, which la...

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Autores principales: Ming Ye, Jennifer Vena, Jeffrey Johnson, Grace Shen-Tu, Dean Eurich
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Lenguaje:EN
Publicado: Swansea University 2021
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spelling oai:doaj.org-article:f8fba3d0e17541d89a7f9bf089622b932021-12-03T15:47:28ZChronic Disease Surveillance in Alberta’s Tomorrow Project using Administrative Health Data10.23889/ijpds.v6i1.16722399-4908https://doaj.org/article/f8fba3d0e17541d89a7f9bf089622b932021-10-01T00:00:00Zhttps://ijpds.org/article/view/1672https://doaj.org/toc/2399-4908 Introduction Alberta's Tomorrow Project (ATP) is the largest population-based prospective cohort study of cancer and chronic diseases in Alberta, Canada. The ATP cohort data were primarily self-reported by participants on lifestyle behaviors and disease risk factors at the enrollment, which lacks sufficient and accurate data on chronic disease diagnosis for longer-term follow-up. Objectives To characterize the occurrence rate and trend of chronic diseases in the ATP cohort by linking with administrative healthcare data. Methods A set of validated algorithms using ICD codes were applied to Alberta Health (AH) administrative data (October 2000-March 2018) linked to the ATP cohort to determine the prevalence and incidence of common chronic diseases. Results There were 52,770 ATP participants (51.2± 9.4 years old at enrollment and 63.7% females) linked to the AH data with average follow-up of 10.1± 4.4 years. In the ATP cohort, hypertension (18.5%), depression (18.1%), chronic pain (12.8%), osteoarthritis (10.1%) and cardiovascular diseases (8.7%) were the most prevalent chronic conditions. The incidence rates varied across diseases, with the highest rates for hypertension (22.1 per 1000 person-year), osteoarthritis (16.2 per 1000 person-year) and ischemic heart diseases (13.0 per 1000 person-year). All chronic conditions had increased prevalence over time (p <0.001 for trend tests), while incidence rates were relatively stable. The proportion of participants with two or more of these conditions (multi-morbidity) increased from 3.9% in 2001 to 40.3% in 2017. Conclusions This study shows an increasing trend of chronic diseases in the ATP cohort, particularly related to cardiovascular diseases and multi-morbidity. Using administrative health data to monitor chronic diseases for large population-based prospective cohort studies is feasible in Alberta, and our approach could be further applied in a broader research area, including health services research, to enhance research capacity of these population-based studies in Canada. Ming YeJennifer VenaJeffrey JohnsonGrace Shen-TuDean EurichSwansea UniversityarticleDemography. Population. Vital eventsHB848-3697ENInternational Journal of Population Data Science, Vol 6, Iss 1 (2021)
institution DOAJ
collection DOAJ
language EN
topic Demography. Population. Vital events
HB848-3697
spellingShingle Demography. Population. Vital events
HB848-3697
Ming Ye
Jennifer Vena
Jeffrey Johnson
Grace Shen-Tu
Dean Eurich
Chronic Disease Surveillance in Alberta’s Tomorrow Project using Administrative Health Data
description Introduction Alberta's Tomorrow Project (ATP) is the largest population-based prospective cohort study of cancer and chronic diseases in Alberta, Canada. The ATP cohort data were primarily self-reported by participants on lifestyle behaviors and disease risk factors at the enrollment, which lacks sufficient and accurate data on chronic disease diagnosis for longer-term follow-up. Objectives To characterize the occurrence rate and trend of chronic diseases in the ATP cohort by linking with administrative healthcare data. Methods A set of validated algorithms using ICD codes were applied to Alberta Health (AH) administrative data (October 2000-March 2018) linked to the ATP cohort to determine the prevalence and incidence of common chronic diseases. Results There were 52,770 ATP participants (51.2± 9.4 years old at enrollment and 63.7% females) linked to the AH data with average follow-up of 10.1± 4.4 years. In the ATP cohort, hypertension (18.5%), depression (18.1%), chronic pain (12.8%), osteoarthritis (10.1%) and cardiovascular diseases (8.7%) were the most prevalent chronic conditions. The incidence rates varied across diseases, with the highest rates for hypertension (22.1 per 1000 person-year), osteoarthritis (16.2 per 1000 person-year) and ischemic heart diseases (13.0 per 1000 person-year). All chronic conditions had increased prevalence over time (p <0.001 for trend tests), while incidence rates were relatively stable. The proportion of participants with two or more of these conditions (multi-morbidity) increased from 3.9% in 2001 to 40.3% in 2017. Conclusions This study shows an increasing trend of chronic diseases in the ATP cohort, particularly related to cardiovascular diseases and multi-morbidity. Using administrative health data to monitor chronic diseases for large population-based prospective cohort studies is feasible in Alberta, and our approach could be further applied in a broader research area, including health services research, to enhance research capacity of these population-based studies in Canada.
format article
author Ming Ye
Jennifer Vena
Jeffrey Johnson
Grace Shen-Tu
Dean Eurich
author_facet Ming Ye
Jennifer Vena
Jeffrey Johnson
Grace Shen-Tu
Dean Eurich
author_sort Ming Ye
title Chronic Disease Surveillance in Alberta’s Tomorrow Project using Administrative Health Data
title_short Chronic Disease Surveillance in Alberta’s Tomorrow Project using Administrative Health Data
title_full Chronic Disease Surveillance in Alberta’s Tomorrow Project using Administrative Health Data
title_fullStr Chronic Disease Surveillance in Alberta’s Tomorrow Project using Administrative Health Data
title_full_unstemmed Chronic Disease Surveillance in Alberta’s Tomorrow Project using Administrative Health Data
title_sort chronic disease surveillance in alberta’s tomorrow project using administrative health data
publisher Swansea University
publishDate 2021
url https://doaj.org/article/f8fba3d0e17541d89a7f9bf089622b93
work_keys_str_mv AT mingye chronicdiseasesurveillanceinalbertastomorrowprojectusingadministrativehealthdata
AT jennifervena chronicdiseasesurveillanceinalbertastomorrowprojectusingadministrativehealthdata
AT jeffreyjohnson chronicdiseasesurveillanceinalbertastomorrowprojectusingadministrativehealthdata
AT graceshentu chronicdiseasesurveillanceinalbertastomorrowprojectusingadministrativehealthdata
AT deaneurich chronicdiseasesurveillanceinalbertastomorrowprojectusingadministrativehealthdata
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