Barriers and facilitators to family participation in the care of their hospitalized loved ones

This<strong> </strong>study’s objective was to better understand family members’ experiences in order to identify how healthcare organizations can facilitate their participation in the care of a hospitalized loved one. Eighteen individuals at the bedside of a hospitalized loved one were...

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Autores principales:	Lynda Bélanger, Marie Desmartis, Martin Coulombe
Formato:	article
Lenguaje:	EN
Publicado:	The Beryl Institute 2018
Materias:	patient and family-centered care family experience patient experience qualitative methods quality of care Medicine (General) R5-920 Public aspects of medicine RA1-1270
Acceso en línea:	https://doaj.org/article/f946374eba3d421f880441f9dd49d861
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spelling	oai:doaj.org-article:f946374eba3d421f880441f9dd49d8612021-11-15T04:25:45ZBarriers and facilitators to family participation in the care of their hospitalized loved ones2372-0247https://doaj.org/article/f946374eba3d421f880441f9dd49d8612018-04-01T00:00:00Zhttps://pxjournal.org/journal/vol5/iss1/9https://doaj.org/toc/2372-0247This<strong> </strong>study’s objective was to better understand family members’ experiences in order to identify how healthcare organizations can facilitate their participation in the care of a hospitalized loved one. Eighteen individuals at the bedside of a hospitalized loved one were interviewed individually. Roles at the bedside and factors that facilitated their participation or represented barriers were examined. A qualitative analysis using a mixed inductive/deductive approach was performed. Reassurance and emotional support, as well as sharing information with the healthcare team emerged as main roles. Quality and timeliness of the information received about the patient’s condition, prognosis and changes in medical condition, as well as information on how to participate in their care, were the factors most frequently evoked as facilitating participation. On the other hand, the need to improve communication channels and access to doctors were highlighted. Most family members having no prior knowledge or exposure to healthcare environments reported feeling overwhelmed in this foreign environment. Among the suggestions on how to improve their experience, having a well-identified contact person who liaises with them and who can instruct them on how to participate in care during hospitalization and back at home was frequently suggested. Furthermore, many mentioned that recognizing the experiential knowledge they have of the patient allows for more holistic care and contributes to improve both patient and family experience. Families need to be adequately recognized and supported and have access to information in a timely manner so that their contribution to their loved one’s care is maximized and the burden associated with this stressful experience alleviated.Lynda BélangerMarie DesmartisMartin CoulombeThe Beryl Institutearticlepatient and family-centered carefamily experiencepatient experiencequalitative methodsquality of careMedicine (General)R5-920Public aspects of medicineRA1-1270ENPatient Experience Journal (2018)
institution	DOAJ
collection	DOAJ
language	EN
topic	patient and family-centered care family experience patient experience qualitative methods quality of care Medicine (General) R5-920 Public aspects of medicine RA1-1270
spellingShingle	patient and family-centered care family experience patient experience qualitative methods quality of care Medicine (General) R5-920 Public aspects of medicine RA1-1270 Lynda Bélanger Marie Desmartis Martin Coulombe Barriers and facilitators to family participation in the care of their hospitalized loved ones
description	This<strong> </strong>study’s objective was to better understand family members’ experiences in order to identify how healthcare organizations can facilitate their participation in the care of a hospitalized loved one. Eighteen individuals at the bedside of a hospitalized loved one were interviewed individually. Roles at the bedside and factors that facilitated their participation or represented barriers were examined. A qualitative analysis using a mixed inductive/deductive approach was performed. Reassurance and emotional support, as well as sharing information with the healthcare team emerged as main roles. Quality and timeliness of the information received about the patient’s condition, prognosis and changes in medical condition, as well as information on how to participate in their care, were the factors most frequently evoked as facilitating participation. On the other hand, the need to improve communication channels and access to doctors were highlighted. Most family members having no prior knowledge or exposure to healthcare environments reported feeling overwhelmed in this foreign environment. Among the suggestions on how to improve their experience, having a well-identified contact person who liaises with them and who can instruct them on how to participate in care during hospitalization and back at home was frequently suggested. Furthermore, many mentioned that recognizing the experiential knowledge they have of the patient allows for more holistic care and contributes to improve both patient and family experience. Families need to be adequately recognized and supported and have access to information in a timely manner so that their contribution to their loved one’s care is maximized and the burden associated with this stressful experience alleviated.
format	article
author	Lynda Bélanger Marie Desmartis Martin Coulombe
author_facet	Lynda Bélanger Marie Desmartis Martin Coulombe
author_sort	Lynda Bélanger
title	Barriers and facilitators to family participation in the care of their hospitalized loved ones
title_short	Barriers and facilitators to family participation in the care of their hospitalized loved ones
title_full	Barriers and facilitators to family participation in the care of their hospitalized loved ones
title_fullStr	Barriers and facilitators to family participation in the care of their hospitalized loved ones
title_full_unstemmed	Barriers and facilitators to family participation in the care of their hospitalized loved ones
title_sort	barriers and facilitators to family participation in the care of their hospitalized loved ones
publisher	The Beryl Institute
publishDate	2018
url	https://doaj.org/article/f946374eba3d421f880441f9dd49d861
work_keys_str_mv	AT lyndabelanger barriersandfacilitatorstofamilyparticipationinthecareoftheirhospitalizedlovedones AT mariedesmartis barriersandfacilitatorstofamilyparticipationinthecareoftheirhospitalizedlovedones AT martincoulombe barriersandfacilitatorstofamilyparticipationinthecareoftheirhospitalizedlovedones
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Barriers and facilitators to family participation in the care of their hospitalized loved ones

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