Applying experience-based co-design with vulnerable populations: Lessons from a systematic review of methods to involve patients, families and service providers in child and youth mental health service improvement

The objective was to identify methods used to involve patients, family and service providers in child and youth mental health service improvement research. We analyzed the alignment of methods used with Experience-Based Co-Design (EBCD) methodology, and how power imbalances among participants were a...

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Autores principales:	Alison Mulvale, Ashleigh Miatello, Christina Hackett, Gillian Mulvale
Formato:	article
Lenguaje:	EN
Publicado:	The Beryl Institute 2016
Materias:	child and youth experience-based co-design participatory research mental health person-centeredness patient & family engagement Medicine (General) R5-920 Public aspects of medicine RA1-1270
Acceso en línea:	https://doaj.org/article/f9f81302dd744c36810de419868e7659
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spelling	oai:doaj.org-article:f9f81302dd744c36810de419868e76592021-11-15T04:21:38ZApplying experience-based co-design with vulnerable populations: Lessons from a systematic review of methods to involve patients, families and service providers in child and youth mental health service improvement2372-0247https://doaj.org/article/f9f81302dd744c36810de419868e76592016-04-01T00:00:00Zhttps://pxjournal.org/journal/vol3/iss1/15https://doaj.org/toc/2372-0247The objective was to identify methods used to involve patients, family and service providers in child and youth mental health service improvement research. We analyzed the alignment of methods used with Experience-Based Co-Design (EBCD) methodology, and how power imbalances among participants were addressed. A systematic review of the English-language peer review literature since 2004 was carried out. The EMBASE, Scholar’s Portal, PubMed, Web of Science databases and the Ontario College of Art and Design University libraries were searched electronically for variations of ‘child’, ‘mental health’, ‘experience-based co-design’, ‘participatory research’ and ‘health care services’. Textual data was systematically extracted and analyzed. The electronic search identified 1468 articles; 13 remained following full text review and reference checking. Many participatory research studies in child and youth mental health were consistent with core elements of the EBCD methodology, but few focused on experiences and incorporated the perspectives of all participants throughout the research process. Story telling and visual media, employing youth as researcher partners, establishing equal status among participants, offering counseling support, paying particular attention to confidentiality, scheduling frequent breaks, and having skilled interviewers and facilitators were suggested methods to address power imbalances for this vulnerable population. Conclusion-The existing child and youth mental health participatory research literature aligns considerably with many elements of EBCD methodology and suggests diverse approaches to address power imbalances. More systematic application of the full range of elements will help to achieve patient centeredness and recovery in mental health and for other vulnerable populations.Alison MulvaleAshleigh MiatelloChristina HackettGillian MulvaleThe Beryl Institutearticlechild and youthexperience-based co-designparticipatory researchmental healthperson-centerednesspatient & family engagementMedicine (General)R5-920Public aspects of medicineRA1-1270ENPatient Experience Journal (2016)
institution	DOAJ
collection	DOAJ
language	EN
topic	child and youth experience-based co-design participatory research mental health person-centeredness patient & family engagement Medicine (General) R5-920 Public aspects of medicine RA1-1270
spellingShingle	child and youth experience-based co-design participatory research mental health person-centeredness patient & family engagement Medicine (General) R5-920 Public aspects of medicine RA1-1270 Alison Mulvale Ashleigh Miatello Christina Hackett Gillian Mulvale Applying experience-based co-design with vulnerable populations: Lessons from a systematic review of methods to involve patients, families and service providers in child and youth mental health service improvement
description	The objective was to identify methods used to involve patients, family and service providers in child and youth mental health service improvement research. We analyzed the alignment of methods used with Experience-Based Co-Design (EBCD) methodology, and how power imbalances among participants were addressed. A systematic review of the English-language peer review literature since 2004 was carried out. The EMBASE, Scholar’s Portal, PubMed, Web of Science databases and the Ontario College of Art and Design University libraries were searched electronically for variations of ‘child’, ‘mental health’, ‘experience-based co-design’, ‘participatory research’ and ‘health care services’. Textual data was systematically extracted and analyzed. The electronic search identified 1468 articles; 13 remained following full text review and reference checking. Many participatory research studies in child and youth mental health were consistent with core elements of the EBCD methodology, but few focused on experiences and incorporated the perspectives of all participants throughout the research process. Story telling and visual media, employing youth as researcher partners, establishing equal status among participants, offering counseling support, paying particular attention to confidentiality, scheduling frequent breaks, and having skilled interviewers and facilitators were suggested methods to address power imbalances for this vulnerable population. Conclusion-The existing child and youth mental health participatory research literature aligns considerably with many elements of EBCD methodology and suggests diverse approaches to address power imbalances. More systematic application of the full range of elements will help to achieve patient centeredness and recovery in mental health and for other vulnerable populations.
format	article
author	Alison Mulvale Ashleigh Miatello Christina Hackett Gillian Mulvale
author_facet	Alison Mulvale Ashleigh Miatello Christina Hackett Gillian Mulvale
author_sort	Alison Mulvale
title	Applying experience-based co-design with vulnerable populations: Lessons from a systematic review of methods to involve patients, families and service providers in child and youth mental health service improvement
title_short	Applying experience-based co-design with vulnerable populations: Lessons from a systematic review of methods to involve patients, families and service providers in child and youth mental health service improvement
title_full	Applying experience-based co-design with vulnerable populations: Lessons from a systematic review of methods to involve patients, families and service providers in child and youth mental health service improvement
title_fullStr	Applying experience-based co-design with vulnerable populations: Lessons from a systematic review of methods to involve patients, families and service providers in child and youth mental health service improvement
title_full_unstemmed	Applying experience-based co-design with vulnerable populations: Lessons from a systematic review of methods to involve patients, families and service providers in child and youth mental health service improvement
title_sort	applying experience-based co-design with vulnerable populations: lessons from a systematic review of methods to involve patients, families and service providers in child and youth mental health service improvement
publisher	The Beryl Institute
publishDate	2016
url	https://doaj.org/article/f9f81302dd744c36810de419868e7659
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Applying experience-based co-design with vulnerable populations: Lessons from a systematic review of methods to involve patients, families and service providers in child and youth mental health service improvement

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