“I Want That Life a Lot…How on Earth Do I Get That?” Examining Challenges for Men With Barth Syndrome in Their Transitions to Adulthood
vFor youth with life-limiting chronic illnesses, transitioning to adulthood in line with age-norms may be difficult due to symptom severity and shortened survival. This study explores whether individuals with Barth syndrome (BTHS), a condition uniquely characterized by extreme prognostic uncertainty...
Guardado en:
Autores principales: | Iyar Mazar PhD, Sara M. Moorman PhD |
---|---|
Formato: | article |
Lenguaje: | EN |
Publicado: |
SAGE Publishing
2021
|
Materias: | |
Acceso en línea: | https://doaj.org/article/fa1ed7b2866d459aa34229bb5d160a06 |
Etiquetas: |
Agregar Etiqueta
Sin Etiquetas, Sea el primero en etiquetar este registro!
|
Ejemplares similares
-
Anal human papillomavirus prevalence and risk factors among men who have sex with men in Vietnam
por: Le Anh Tuan, MD, PhD, et al.
Publicado: (2021) -
The Voices of Black South African Men on Renal Dialysis at a Tertiary Hospital: A Phenomenological Inquiry
por: Jabu Mokwena PhD, et al.
Publicado: (2021) -
“That’s Me I am the Farmer of the Land”: Exploring Identities, Masculinities, and Health Among Male Farmers’ in Ireland
por: Conor Hammersley MSc, et al.
Publicado: (2021) -
‘Teacher! Teacher! I want “A”, teacher!’
por: Philip Cass
Publicado: (2011) -
Prognostic Significance of TLR2, SMAD3 and Localization-dependent SATB1 in Stage I and II Non–Small-Cell Lung Cancer Patients
por: Justyna Durślewicz MSc, et al.
Publicado: (2021)