Instruments to assess quality of life in people with mental health problems: a systematic review and dimension analysis of generic, domain- and disease-specific instruments

Abstract Objectives The importance of economic evaluations of mental healthcare interventions is increasingly recognized. Despite the multitude of available quality of life instruments, concerns have been raised regarding the content validity of these instruments, and hence suitability for use in me...

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Autores principales: F. C. W. van Krugten, K. Feskens, J. J. V. Busschbach, L. Hakkaart-van Roijen, W. B. F. Brouwer
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Publicado: BMC 2021
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Acceso en línea:https://doaj.org/article/faa5d1f18f004483a3a15f9359b40447
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spelling oai:doaj.org-article:faa5d1f18f004483a3a15f9359b404472021-11-08T10:58:40ZInstruments to assess quality of life in people with mental health problems: a systematic review and dimension analysis of generic, domain- and disease-specific instruments10.1186/s12955-021-01883-w1477-7525https://doaj.org/article/faa5d1f18f004483a3a15f9359b404472021-11-01T00:00:00Zhttps://doi.org/10.1186/s12955-021-01883-whttps://doaj.org/toc/1477-7525Abstract Objectives The importance of economic evaluations of mental healthcare interventions is increasingly recognized. Despite the multitude of available quality of life instruments, concerns have been raised regarding the content validity of these instruments, and hence suitability for use in mental health. The aim of this paper, therefore, was to assess the content validity and the suitability of existing quality of life instruments for use in economic evaluations in mental health problems. Methods In order to identify available quality of life instruments used in people with mental health problems, a systematic review was performed using the Embase, Medline and PsycINFO databases (time period January 2012 to January 2018). Two reviewers independently assessed study eligibility and executed data extraction. The evaluation framework of Connell and colleagues was used to assess whether the identified quality of life instruments cover the dimensions valued highly by people with mental health problems. Two reviewers independently mapped the content of each identified instrument onto the evaluation framework and indicated the extent to which the instrument covered each of the dimensions of the evaluation framework. Results Searches of databases yielded a total of 5727 references. Following duplicate removal and double-independent screening, 949 studies were included in the qualitative synthesis. A total of 44 unique quality of life instruments were identified, of which 12 were adapted versions of original instruments. The best coverage of the dimensions of the evaluation framework of Connell and colleagues was by the WHOQOL-100, S-QoL, SQLS, EDQoL, QLI and the IMHQOL, but none fully covered all dimensions of the evaluation framework. Conclusions The results of this study highlight the multitude of available quality of life instruments used in people with mental health problems and indicate that none of the available quality of life instruments fully cover the dimensions previously found to be important in people with mental health problems. Future research should explore the possibilities of refining or expanding existing instruments as well as the development and testing of new quality of life instruments to ensure that all relevant quality of life dimensions for people with mental health problems are covered in evaluations.F. C. W. van KrugtenK. FeskensJ. J. V. BusschbachL. Hakkaart-van RoijenW. B. F. BrouwerBMCarticleQuality of lifePatient-reported outcome measuresMental healthSystematic reviewCost-effectivenessQALYComputer applications to medicine. Medical informaticsR858-859.7ENHealth and Quality of Life Outcomes, Vol 19, Iss 1, Pp 1-13 (2021)
institution DOAJ
collection DOAJ
language EN
topic Quality of life
Patient-reported outcome measures
Mental health
Systematic review
Cost-effectiveness
QALY
Computer applications to medicine. Medical informatics
R858-859.7
spellingShingle Quality of life
Patient-reported outcome measures
Mental health
Systematic review
Cost-effectiveness
QALY
Computer applications to medicine. Medical informatics
R858-859.7
F. C. W. van Krugten
K. Feskens
J. J. V. Busschbach
L. Hakkaart-van Roijen
W. B. F. Brouwer
Instruments to assess quality of life in people with mental health problems: a systematic review and dimension analysis of generic, domain- and disease-specific instruments
description Abstract Objectives The importance of economic evaluations of mental healthcare interventions is increasingly recognized. Despite the multitude of available quality of life instruments, concerns have been raised regarding the content validity of these instruments, and hence suitability for use in mental health. The aim of this paper, therefore, was to assess the content validity and the suitability of existing quality of life instruments for use in economic evaluations in mental health problems. Methods In order to identify available quality of life instruments used in people with mental health problems, a systematic review was performed using the Embase, Medline and PsycINFO databases (time period January 2012 to January 2018). Two reviewers independently assessed study eligibility and executed data extraction. The evaluation framework of Connell and colleagues was used to assess whether the identified quality of life instruments cover the dimensions valued highly by people with mental health problems. Two reviewers independently mapped the content of each identified instrument onto the evaluation framework and indicated the extent to which the instrument covered each of the dimensions of the evaluation framework. Results Searches of databases yielded a total of 5727 references. Following duplicate removal and double-independent screening, 949 studies were included in the qualitative synthesis. A total of 44 unique quality of life instruments were identified, of which 12 were adapted versions of original instruments. The best coverage of the dimensions of the evaluation framework of Connell and colleagues was by the WHOQOL-100, S-QoL, SQLS, EDQoL, QLI and the IMHQOL, but none fully covered all dimensions of the evaluation framework. Conclusions The results of this study highlight the multitude of available quality of life instruments used in people with mental health problems and indicate that none of the available quality of life instruments fully cover the dimensions previously found to be important in people with mental health problems. Future research should explore the possibilities of refining or expanding existing instruments as well as the development and testing of new quality of life instruments to ensure that all relevant quality of life dimensions for people with mental health problems are covered in evaluations.
format article
author F. C. W. van Krugten
K. Feskens
J. J. V. Busschbach
L. Hakkaart-van Roijen
W. B. F. Brouwer
author_facet F. C. W. van Krugten
K. Feskens
J. J. V. Busschbach
L. Hakkaart-van Roijen
W. B. F. Brouwer
author_sort F. C. W. van Krugten
title Instruments to assess quality of life in people with mental health problems: a systematic review and dimension analysis of generic, domain- and disease-specific instruments
title_short Instruments to assess quality of life in people with mental health problems: a systematic review and dimension analysis of generic, domain- and disease-specific instruments
title_full Instruments to assess quality of life in people with mental health problems: a systematic review and dimension analysis of generic, domain- and disease-specific instruments
title_fullStr Instruments to assess quality of life in people with mental health problems: a systematic review and dimension analysis of generic, domain- and disease-specific instruments
title_full_unstemmed Instruments to assess quality of life in people with mental health problems: a systematic review and dimension analysis of generic, domain- and disease-specific instruments
title_sort instruments to assess quality of life in people with mental health problems: a systematic review and dimension analysis of generic, domain- and disease-specific instruments
publisher BMC
publishDate 2021
url https://doaj.org/article/faa5d1f18f004483a3a15f9359b40447
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