Views of university students in Jordan towards Biobanking

Abstract Background Biobanks are considered primary means+ of supporting contemporary research, in order to deliver personalized and precise diagnostics with public acceptance and participation as a cornerstone for their success. Aims This study aims to assess knowledge, perception, and attitudes to...

Descripción completa

Guardado en:

Detalles Bibliográficos
Autores principales:	Faisal Khatib, Dayana Jibrin, Joud Al-Majali, Mira Elhussieni, Sharifeh Almasaid, Mamoun Ahram
Formato:	article
Lenguaje:	EN
Publicado:	BMC 2021
Materias:	Biobanking University students Jordan Research participation Privacy Informed consent, Medical school Medical philosophy. Medical ethics R723-726
Acceso en línea:	https://doaj.org/article/fba25a977e5749e8b236d5e8a6e82a69
Etiquetas:	Agregar Etiqueta Sin Etiquetas, Sea el primero en etiquetar este registro!

id	oai:doaj.org-article:fba25a977e5749e8b236d5e8a6e82a69
record_format	dspace
spelling	oai:doaj.org-article:fba25a977e5749e8b236d5e8a6e82a692021-11-14T12:05:47ZViews of university students in Jordan towards Biobanking10.1186/s12910-021-00719-y1472-6939https://doaj.org/article/fba25a977e5749e8b236d5e8a6e82a692021-11-01T00:00:00Zhttps://doi.org/10.1186/s12910-021-00719-yhttps://doaj.org/toc/1472-6939Abstract Background Biobanks are considered primary means+ of supporting contemporary research, in order to deliver personalized and precise diagnostics with public acceptance and participation as a cornerstone for their success. Aims This study aims to assess knowledge, perception, and attitudes towards biomedical research and biobanking among students at the University of Jordan. Methodology An online questionnaire was designed, developed, and piloted. It was divided into 5 sections that included questions related to issues of biomedical research and biobanking as well as factors influencing the decision to participate. Results Responses from 435 students revealed that 52.9% previously heard of biobanks. There was an overwhelming acceptance for participation in biomedical, genetic, and biobanking research. A blood sample was the most preferred for donation. Protection of privacy, informed consent prior to donation, approval of an ethics committee, and trust towards researchers were the most important factors associated with willingness to participate. On the other hand, the vagueness of the type of research performed on the biospecimens and the unavailability of general research results to the donor had a negative connotation. There was no clear agreement on the type of informed consent preferred by students, but to be contacted and informed of research results was preferred by the majority. Students also preferred the disposal of biospecimens and information when deciding to withdraw from participation. Conclusion There is strong enthusiasm among students to participate in biomedical research and biobanking with all rights reserved thus providing hope for a very promising future in Jordan.Faisal KhatibDayana JibrinJoud Al-MajaliMira ElhussieniSharifeh AlmasaidMamoun AhramBMCarticleBiobankingUniversity studentsJordanResearch participationPrivacyInformed consent, Medical schoolMedical philosophy. Medical ethicsR723-726ENBMC Medical Ethics, Vol 22, Iss 1, Pp 1-10 (2021)
institution	DOAJ
collection	DOAJ
language	EN
topic	Biobanking University students Jordan Research participation Privacy Informed consent, Medical school Medical philosophy. Medical ethics R723-726
spellingShingle	Biobanking University students Jordan Research participation Privacy Informed consent, Medical school Medical philosophy. Medical ethics R723-726 Faisal Khatib Dayana Jibrin Joud Al-Majali Mira Elhussieni Sharifeh Almasaid Mamoun Ahram Views of university students in Jordan towards Biobanking
description	Abstract Background Biobanks are considered primary means+ of supporting contemporary research, in order to deliver personalized and precise diagnostics with public acceptance and participation as a cornerstone for their success. Aims This study aims to assess knowledge, perception, and attitudes towards biomedical research and biobanking among students at the University of Jordan. Methodology An online questionnaire was designed, developed, and piloted. It was divided into 5 sections that included questions related to issues of biomedical research and biobanking as well as factors influencing the decision to participate. Results Responses from 435 students revealed that 52.9% previously heard of biobanks. There was an overwhelming acceptance for participation in biomedical, genetic, and biobanking research. A blood sample was the most preferred for donation. Protection of privacy, informed consent prior to donation, approval of an ethics committee, and trust towards researchers were the most important factors associated with willingness to participate. On the other hand, the vagueness of the type of research performed on the biospecimens and the unavailability of general research results to the donor had a negative connotation. There was no clear agreement on the type of informed consent preferred by students, but to be contacted and informed of research results was preferred by the majority. Students also preferred the disposal of biospecimens and information when deciding to withdraw from participation. Conclusion There is strong enthusiasm among students to participate in biomedical research and biobanking with all rights reserved thus providing hope for a very promising future in Jordan.
format	article
author	Faisal Khatib Dayana Jibrin Joud Al-Majali Mira Elhussieni Sharifeh Almasaid Mamoun Ahram
author_facet	Faisal Khatib Dayana Jibrin Joud Al-Majali Mira Elhussieni Sharifeh Almasaid Mamoun Ahram
author_sort	Faisal Khatib
title	Views of university students in Jordan towards Biobanking
title_short	Views of university students in Jordan towards Biobanking
title_full	Views of university students in Jordan towards Biobanking
title_fullStr	Views of university students in Jordan towards Biobanking
title_full_unstemmed	Views of university students in Jordan towards Biobanking
title_sort	views of university students in jordan towards biobanking
publisher	BMC
publishDate	2021
url	https://doaj.org/article/fba25a977e5749e8b236d5e8a6e82a69
work_keys_str_mv	AT faisalkhatib viewsofuniversitystudentsinjordantowardsbiobanking AT dayanajibrin viewsofuniversitystudentsinjordantowardsbiobanking AT joudalmajali viewsofuniversitystudentsinjordantowardsbiobanking AT miraelhussieni viewsofuniversitystudentsinjordantowardsbiobanking AT sharifehalmasaid viewsofuniversitystudentsinjordantowardsbiobanking AT mamounahram viewsofuniversitystudentsinjordantowardsbiobanking
_version_	1718429504085426176

Views of university students in Jordan towards Biobanking

Ejemplares similares