Dehumanization and burden of care among caregivers of terminally ill patients

This article considers the relationship between dehumanization, ontological representation of death, trust in physicians, and burden of care on the part of caregivers of terminally ill patients. One hundred informal caregivers (relatives and friends) of patients hospitalized in four hospice faciliti...

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Autores principales:	Ines Testoni, Giulia Sicari, Lucia Ronconi, Gianmarco Biancalani, Chiara Franco, Paolo Cottone, Robert Crupi
Formato:	article
Lenguaje:	EN
Publicado:	Open Medical Publishing 2021
Materias:	Medicine R Mental healing RZ400-408
Acceso en línea:	https://doaj.org/article/fc17e562bb474dd387cc566ac8bbaaa1
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spelling	oai:doaj.org-article:fc17e562bb474dd387cc566ac8bbaaa12021-11-08T18:27:23ZDehumanization and burden of care among caregivers of terminally ill patients2420-8124https://doaj.org/article/fc17e562bb474dd387cc566ac8bbaaa12021-10-01T00:00:00Zhttps://healthpsychologyresearch.scholasticahq.com/article/29052-dehumanization-and-burden-of-care-among-caregivers-of-terminally-ill-patients.pdfhttps://doaj.org/toc/2420-8124This article considers the relationship between dehumanization, ontological representation of death, trust in physicians, and burden of care on the part of caregivers of terminally ill patients. One hundred informal caregivers (relatives and friends) of patients hospitalized in four hospice facilities in northern Italy were involved. Of these, 77% were primary caregivers (those who mostly helped the patient). All of the participants were given a questionnaire comprising the Caregiver Burden Inventory (CBI) to determine caregivers' burden in their roles, the questionario post mortem (QPM) (post mortem questionnaire) for the effectiveness of and their trust in the medical nursing team of palliative care services, the Testoni death representation scale (TDRS) to detect their ontological representations of death and the humanity attribution test (HAT) to investigate their attributions of humanity to terminally ill patients. Per the literature, the present results demonstrated higher burden levels for female caregivers and primary caregivers. In informal caregiving, the dehumanization of patients does not have any advantage in reducing the burden of care. Further studies are required to compare formal and informal caregivers concerning the effect of dehumanization.Ines TestoniGiulia SicariLucia RonconiGianmarco BiancalaniChiara FrancoPaolo CottoneRobert CrupiOpen Medical PublishingarticleMedicineRMental healingRZ400-408ENHealth Psychology Research (2021)
institution	DOAJ
collection	DOAJ
language	EN
topic	Medicine R Mental healing RZ400-408
spellingShingle	Medicine R Mental healing RZ400-408 Ines Testoni Giulia Sicari Lucia Ronconi Gianmarco Biancalani Chiara Franco Paolo Cottone Robert Crupi Dehumanization and burden of care among caregivers of terminally ill patients
description	This article considers the relationship between dehumanization, ontological representation of death, trust in physicians, and burden of care on the part of caregivers of terminally ill patients. One hundred informal caregivers (relatives and friends) of patients hospitalized in four hospice facilities in northern Italy were involved. Of these, 77% were primary caregivers (those who mostly helped the patient). All of the participants were given a questionnaire comprising the Caregiver Burden Inventory (CBI) to determine caregivers' burden in their roles, the questionario post mortem (QPM) (post mortem questionnaire) for the effectiveness of and their trust in the medical nursing team of palliative care services, the Testoni death representation scale (TDRS) to detect their ontological representations of death and the humanity attribution test (HAT) to investigate their attributions of humanity to terminally ill patients. Per the literature, the present results demonstrated higher burden levels for female caregivers and primary caregivers. In informal caregiving, the dehumanization of patients does not have any advantage in reducing the burden of care. Further studies are required to compare formal and informal caregivers concerning the effect of dehumanization.
format	article
author	Ines Testoni Giulia Sicari Lucia Ronconi Gianmarco Biancalani Chiara Franco Paolo Cottone Robert Crupi
author_facet	Ines Testoni Giulia Sicari Lucia Ronconi Gianmarco Biancalani Chiara Franco Paolo Cottone Robert Crupi
author_sort	Ines Testoni
title	Dehumanization and burden of care among caregivers of terminally ill patients
title_short	Dehumanization and burden of care among caregivers of terminally ill patients
title_full	Dehumanization and burden of care among caregivers of terminally ill patients
title_fullStr	Dehumanization and burden of care among caregivers of terminally ill patients
title_full_unstemmed	Dehumanization and burden of care among caregivers of terminally ill patients
title_sort	dehumanization and burden of care among caregivers of terminally ill patients
publisher	Open Medical Publishing
publishDate	2021
url	https://doaj.org/article/fc17e562bb474dd387cc566ac8bbaaa1
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Dehumanization and burden of care among caregivers of terminally ill patients

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