A qualitative study of perceptions of determinants of disease burden among young patients with type 1 diabetes and their parents in South India

Henk Verloo,1 Mohan Meenakumari,2 Elizabeth Jean Abraham,3 Gnanam Malarvizhi3 1Department Nursing Sciences, University of Applied Nursing Sciences, La Source, Lausanne, Switzerland; 2Kurinji Hospital, 3PSG College of Nursing, PSG Hospital, Coimbatore, Tamil Nadu, India Background: Diabetes is a lea...

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Autores principales:	Verloo H, Meenakumari M, Abraham EJ, Malarvizhi G
Formato:	article
Lenguaje:	EN
Publicado:	Dove Medical Press 2016
Materias:	Adolescents adherence critical incidence technique India parents perceptions type 1 diabetes young children Specialties of internal medicine RC581-951
Acceso en línea:	https://doaj.org/article/feaaa9061f764fe49172d02d647ec1f3
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spelling	oai:doaj.org-article:feaaa9061f764fe49172d02d647ec1f32021-12-02T09:07:03ZA qualitative study of perceptions of determinants of disease burden among young patients with type 1 diabetes and their parents in South India1178-7007https://doaj.org/article/feaaa9061f764fe49172d02d647ec1f32016-05-01T00:00:00Zhttps://www.dovepress.com/a-qualitative-study-of-perceptions-of-determinants-of-disease-burden-a-peer-reviewed-article-DMSOhttps://doaj.org/toc/1178-7007Henk Verloo,1 Mohan Meenakumari,2 Elizabeth Jean Abraham,3 Gnanam Malarvizhi3 1Department Nursing Sciences, University of Applied Nursing Sciences, La Source, Lausanne, Switzerland; 2Kurinji Hospital, 3PSG College of Nursing, PSG Hospital, Coimbatore, Tamil Nadu, India Background: Diabetes is a leading threat to public health in India. A huge prevalence of type 1 diabetes among young patients is documented in literature; India is one of the countries with the highest number of new cases per year (10,900), of which 3–4 million face poverty along with diabetes. Objective: The aim of this study was to explore the perceptions of determinants of the disease burden among young patients with type 1 diabetes and their parents. Methods: In June 2014, perceptions were collected from eleven young patients and five available parents using the critical incident technique. Results: Disease burdens associated with the management of type 1 diabetes can vary significantly according to the different social and economic determinants facing each household. Determinants associated with good practices in the management of childhood type 1 diabetes included socioeconomic status, unawareness of health complications, and beliefs about nutrition. Coping strategies applied via lifestyle changes included monitoring glycemia and regular checkups by diabetologists. A general lack of awareness about type 1 diabetes in Indian society, stigmatization, and limited access and systematic barriers to the delivery of optimal health care were all perceived to be factors hindering the successful management of chronic type 1 diabetes by young patients and their parents. Conclusion: Stigmatization, a lack of therapeutic adherence, and the financial strains placed on families, particularly on poor ones, are critical. More emphasis must be put on the prevention of acute and long-term complications and education. Keywords: adolescents, adherence, critical incidence technique, India, parents, positive experiences, negative experiences, type 1 diabetes, childrenVerloo HMeenakumari MAbraham EJMalarvizhi GDove Medical PressarticleAdolescentsadherencecritical incidence techniqueIndiaparentsperceptionstype 1 diabetesyoung childrenSpecialties of internal medicineRC581-951ENDiabetes, Metabolic Syndrome and Obesity: Targets and Therapy, Vol 2016, Iss Issue 1, Pp 169-176 (2016)
institution	DOAJ
collection	DOAJ
language	EN
topic	Adolescents adherence critical incidence technique India parents perceptions type 1 diabetes young children Specialties of internal medicine RC581-951
spellingShingle	Adolescents adherence critical incidence technique India parents perceptions type 1 diabetes young children Specialties of internal medicine RC581-951 Verloo H Meenakumari M Abraham EJ Malarvizhi G A qualitative study of perceptions of determinants of disease burden among young patients with type 1 diabetes and their parents in South India
description	Henk Verloo,1 Mohan Meenakumari,2 Elizabeth Jean Abraham,3 Gnanam Malarvizhi3 1Department Nursing Sciences, University of Applied Nursing Sciences, La Source, Lausanne, Switzerland; 2Kurinji Hospital, 3PSG College of Nursing, PSG Hospital, Coimbatore, Tamil Nadu, India Background: Diabetes is a leading threat to public health in India. A huge prevalence of type 1 diabetes among young patients is documented in literature; India is one of the countries with the highest number of new cases per year (10,900), of which 3–4 million face poverty along with diabetes. Objective: The aim of this study was to explore the perceptions of determinants of the disease burden among young patients with type 1 diabetes and their parents. Methods: In June 2014, perceptions were collected from eleven young patients and five available parents using the critical incident technique. Results: Disease burdens associated with the management of type 1 diabetes can vary significantly according to the different social and economic determinants facing each household. Determinants associated with good practices in the management of childhood type 1 diabetes included socioeconomic status, unawareness of health complications, and beliefs about nutrition. Coping strategies applied via lifestyle changes included monitoring glycemia and regular checkups by diabetologists. A general lack of awareness about type 1 diabetes in Indian society, stigmatization, and limited access and systematic barriers to the delivery of optimal health care were all perceived to be factors hindering the successful management of chronic type 1 diabetes by young patients and their parents. Conclusion: Stigmatization, a lack of therapeutic adherence, and the financial strains placed on families, particularly on poor ones, are critical. More emphasis must be put on the prevention of acute and long-term complications and education. Keywords: adolescents, adherence, critical incidence technique, India, parents, positive experiences, negative experiences, type 1 diabetes, children
format	article
author	Verloo H Meenakumari M Abraham EJ Malarvizhi G
author_facet	Verloo H Meenakumari M Abraham EJ Malarvizhi G
author_sort	Verloo H
title	A qualitative study of perceptions of determinants of disease burden among young patients with type 1 diabetes and their parents in South India
title_short	A qualitative study of perceptions of determinants of disease burden among young patients with type 1 diabetes and their parents in South India
title_full	A qualitative study of perceptions of determinants of disease burden among young patients with type 1 diabetes and their parents in South India
title_fullStr	A qualitative study of perceptions of determinants of disease burden among young patients with type 1 diabetes and their parents in South India
title_full_unstemmed	A qualitative study of perceptions of determinants of disease burden among young patients with type 1 diabetes and their parents in South India
title_sort	qualitative study of perceptions of determinants of disease burden among young patients with type 1 diabetes and their parents in south india
publisher	Dove Medical Press
publishDate	2016
url	https://doaj.org/article/feaaa9061f764fe49172d02d647ec1f3
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A qualitative study of perceptions of determinants of disease burden among young patients with type 1 diabetes and their parents in South India

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