¿Cómo reciben los padres la noticia del diagnóstico de su hijo con síndrome de Down?

Background: Having a child with Down syndrome (DS) is usually unexpected and stressful. Aim: To describe the experiences of parents of children with DS at the time of diagnosis. Material and Methods: A self-administered survey was answered by 345 parents (62% women) with an offspring with DS. Result...

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Autores principales:	Paul,María A, Cerda,Jaime, Correa,Catalina, Lizama,Macarena
Lenguaje:	Spanish / Castilian
Publicado:	Sociedad Médica de Santiago 2013
Materias:	Down syndrome Parental notification
Acceso en línea:	http://www.scielo.cl/scielo.php?script=sci_arttext&pid=S0034-98872013000700007
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spelling	oai:scielo:S0034-988720130007000072013-12-17¿Cómo reciben los padres la noticia del diagnóstico de su hijo con síndrome de Down?Paul,María ACerda,JaimeCorrea,CatalinaLizama,Macarena Down syndrome Parental notification Background: Having a child with Down syndrome (DS) is usually unexpected and stressful. Aim: To describe the experiences of parents of children with DS at the time of diagnosis. Material and Methods: A self-administered survey was answered by 345 parents (62% women) with an offspring with DS. Results: Eighty four percent of parents received a postnatal diagnosis of DS, 32.3% were informed of the diagnosis in the presence of his or her partner and 19.3%o received some form of printed material regarding DS. Fifty six percent of respondents considered that the delivery of the diagnosis was inadequate. Factors associated with an overall positive experience were prenatal diagnosis (Odds Ratio (OR) 3.91 (95% Confidence Intervals (CI) 2.06-7.44)) and the presence of both parents at the time of the delivery of the diagnosis (OR 1.84 (95%> CI 1.16-2.91)). Fifty three percent of respondents believe that prenatal diagnosis of DS is preferable. Conclusions: The majority of parents are unsatisfied with the way the diagnosis of DS is delivered. Efforts should be made to educate health personnel regarding the delivery of the diagnosis of SD, to foster opportunities for prenatal diagnosis and to improve the delivery of printed material.info:eu-repo/semantics/openAccessSociedad Médica de SantiagoRevista médica de Chile v.141 n.7 20132013-07-01text/htmlhttp://www.scielo.cl/scielo.php?script=sci_arttext&pid=S0034-98872013000700007es10.4067/S0034-98872013000700007
institution	Scielo Chile
collection	Scielo Chile
language	Spanish / Castilian
topic	Down syndrome Parental notification
spellingShingle	Down syndrome Parental notification Paul,María A Cerda,Jaime Correa,Catalina Lizama,Macarena ¿Cómo reciben los padres la noticia del diagnóstico de su hijo con síndrome de Down?
description	Background: Having a child with Down syndrome (DS) is usually unexpected and stressful. Aim: To describe the experiences of parents of children with DS at the time of diagnosis. Material and Methods: A self-administered survey was answered by 345 parents (62% women) with an offspring with DS. Results: Eighty four percent of parents received a postnatal diagnosis of DS, 32.3% were informed of the diagnosis in the presence of his or her partner and 19.3%o received some form of printed material regarding DS. Fifty six percent of respondents considered that the delivery of the diagnosis was inadequate. Factors associated with an overall positive experience were prenatal diagnosis (Odds Ratio (OR) 3.91 (95% Confidence Intervals (CI) 2.06-7.44)) and the presence of both parents at the time of the delivery of the diagnosis (OR 1.84 (95%> CI 1.16-2.91)). Fifty three percent of respondents believe that prenatal diagnosis of DS is preferable. Conclusions: The majority of parents are unsatisfied with the way the diagnosis of DS is delivered. Efforts should be made to educate health personnel regarding the delivery of the diagnosis of SD, to foster opportunities for prenatal diagnosis and to improve the delivery of printed material.
author	Paul,María A Cerda,Jaime Correa,Catalina Lizama,Macarena
author_facet	Paul,María A Cerda,Jaime Correa,Catalina Lizama,Macarena
author_sort	Paul,María A
title	¿Cómo reciben los padres la noticia del diagnóstico de su hijo con síndrome de Down?
title_short	¿Cómo reciben los padres la noticia del diagnóstico de su hijo con síndrome de Down?
title_full	¿Cómo reciben los padres la noticia del diagnóstico de su hijo con síndrome de Down?
title_fullStr	¿Cómo reciben los padres la noticia del diagnóstico de su hijo con síndrome de Down?
title_full_unstemmed	¿Cómo reciben los padres la noticia del diagnóstico de su hijo con síndrome de Down?
title_sort	¿cómo reciben los padres la noticia del diagnóstico de su hijo con síndrome de down?
publisher	Sociedad Médica de Santiago
publishDate	2013
url	http://www.scielo.cl/scielo.php?script=sci_arttext&pid=S0034-98872013000700007
work_keys_str_mv	AT paulmariaa comorecibenlospadreslanoticiadeldiagnosticodesuhijoconsindromededown AT cerdajaime comorecibenlospadreslanoticiadeldiagnosticodesuhijoconsindromededown AT correacatalina comorecibenlospadreslanoticiadeldiagnosticodesuhijoconsindromededown AT lizamamacarena comorecibenlospadreslanoticiadeldiagnosticodesuhijoconsindromededown
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¿Cómo reciben los padres la noticia del diagnóstico de su hijo con síndrome de Down?

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