GENOMICS, PUBLIC HEALTH AND IDENTITY

This paper questions the utility of the ethical principles that are usually invoked to deal with genomic issues, particularly genetic databases. Concepts such as solidarity, benefit sharing, equity, public participation, and collective identity are discussed. The author argues that genetic banks are...

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Autor principal:	Chadwick,Ruth
Lenguaje:	English
Publicado:	Centro Interdisciplinario de Estudios en Bioética, Universidad de Chile 2003
Materias:	genomics ethics biobanks collective identity individual interests collective interests community
Acceso en línea:	http://www.scielo.cl/scielo.php?script=sci_arttext&pid=S1726-569X2003000200007
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spelling	oai:scielo:S1726-569X20030002000072005-10-12GENOMICS, PUBLIC HEALTH AND IDENTITYChadwick,Ruth genomics ethics biobanks collective identity individual interests collective interests community This paper questions the utility of the ethical principles that are usually invoked to deal with genomic issues, particularly genetic databases. Concepts such as solidarity, benefit sharing, equity, public participation, and collective identity are discussed. The author argues that genetic banks are precipitating new concern over group interest, as opposed to concern over issues arising from individualistic medical ethics. Genomics era needs new paradigms in ethics. An individualistic approach based on choice and autonomy is not useful, because we make choices not only as individuals but also as members of different groups. The doctrine of informed consent evolved in different historical conditions from the ones we face in the era of genomics. This is complicated by the global context of genetic research, in addition to powerful commercial interests. This suggests that it is not sufficient to move from an individual-centred ethic approach to a more community-centred one; an approach of renegotiating the relationship between individual and community. We need also to be clear about what the interests at stake are, which may mean reconceiving the terms 'individual' and 'community' in this context and the ways in which their interests are affected, identifying the sources of collective identity that are at stakeinfo:eu-repo/semantics/openAccessCentro Interdisciplinario de Estudios en Bioética, Universidad de ChileActa bioethica v.9 n.2 20032003-01-01text/htmlhttp://www.scielo.cl/scielo.php?script=sci_arttext&pid=S1726-569X2003000200007en10.4067/S1726-569X2003000200007
institution	Scielo Chile
collection	Scielo Chile
language	English
topic	genomics ethics biobanks collective identity individual interests collective interests community
spellingShingle	genomics ethics biobanks collective identity individual interests collective interests community Chadwick,Ruth GENOMICS, PUBLIC HEALTH AND IDENTITY
description	This paper questions the utility of the ethical principles that are usually invoked to deal with genomic issues, particularly genetic databases. Concepts such as solidarity, benefit sharing, equity, public participation, and collective identity are discussed. The author argues that genetic banks are precipitating new concern over group interest, as opposed to concern over issues arising from individualistic medical ethics. Genomics era needs new paradigms in ethics. An individualistic approach based on choice and autonomy is not useful, because we make choices not only as individuals but also as members of different groups. The doctrine of informed consent evolved in different historical conditions from the ones we face in the era of genomics. This is complicated by the global context of genetic research, in addition to powerful commercial interests. This suggests that it is not sufficient to move from an individual-centred ethic approach to a more community-centred one; an approach of renegotiating the relationship between individual and community. We need also to be clear about what the interests at stake are, which may mean reconceiving the terms 'individual' and 'community' in this context and the ways in which their interests are affected, identifying the sources of collective identity that are at stake
author	Chadwick,Ruth
author_facet	Chadwick,Ruth
author_sort	Chadwick,Ruth
title	GENOMICS, PUBLIC HEALTH AND IDENTITY
title_short	GENOMICS, PUBLIC HEALTH AND IDENTITY
title_full	GENOMICS, PUBLIC HEALTH AND IDENTITY
title_fullStr	GENOMICS, PUBLIC HEALTH AND IDENTITY
title_full_unstemmed	GENOMICS, PUBLIC HEALTH AND IDENTITY
title_sort	genomics, public health and identity
publisher	Centro Interdisciplinario de Estudios en Bioética, Universidad de Chile
publishDate	2003
url	http://www.scielo.cl/scielo.php?script=sci_arttext&pid=S1726-569X2003000200007
work_keys_str_mv	AT chadwickruth genomicspublichealthandidentity
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GENOMICS, PUBLIC HEALTH AND IDENTITY

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