Genomic sovereignty or the enemy within

Genomic sovereignty is a concept that has become very popular among developing countries such as India, China, South Africa and Mexico. This concept is a response to developed countries that have taken advantage of those countries and researchers who don't have the means for protecting their ow...

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Autores principales:	Siqueiros-García,Jesús Mario, Oliva-Sánchez,Pablo Francisco, Saruwatari-Zavala,Garbiñe
Lenguaje:	English
Publicado:	Centro Interdisciplinario de Estudios en Bioética, Universidad de Chile 2013
Materias:	genomic sovereignty Mexico law research communities developing countries biological samples cultural values biobanks ethics
Acceso en línea:	http://www.scielo.cl/scielo.php?script=sci_arttext&pid=S1726-569X2013000200011
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spelling	oai:scielo:S1726-569X20130002000112013-12-17Genomic sovereignty or the enemy withinSiqueiros-García,Jesús MarioOliva-Sánchez,Pablo FranciscoSaruwatari-Zavala,Garbiñe genomic sovereignty Mexico law research communities developing countries biological samples cultural values biobanks ethics Genomic sovereignty is a concept that has become very popular among developing countries such as India, China, South Africa and Mexico. This concept is a response to developed countries that have taken advantage of those countries and researchers who don't have the means for protecting their own biogenetic resources. In this article we argue that genomic sovereignty is not about the others extracting and exploiting local human genetic resources, but developing and implementing the ethical, legal and administrative tools, based on transparency, openness and equal access to biological material, in order to build up a robust research networks. Being biological samples a scarce and valuable good, we conclude that controlling the access to this resource by means of the law, without a well implemented biobanking system and a clear scientific policy may lead to a situation where asymmetric relations are generated among research groups of the very same developing country. We would advice to those countries pretending to protect their biological samples and data from the outside, before developing laws against possible intrusions, they need to design strategies to promote equal and fair access to both resources paramount to biomedical research.info:eu-repo/semantics/openAccessCentro Interdisciplinario de Estudios en Bioética, Universidad de ChileActa bioethica v.19 n.2 20132013-11-01text/htmlhttp://www.scielo.cl/scielo.php?script=sci_arttext&pid=S1726-569X2013000200011en10.4067/S1726-569X2013000200011
institution	Scielo Chile
collection	Scielo Chile
language	English
topic	genomic sovereignty Mexico law research communities developing countries biological samples cultural values biobanks ethics
spellingShingle	genomic sovereignty Mexico law research communities developing countries biological samples cultural values biobanks ethics Siqueiros-García,Jesús Mario Oliva-Sánchez,Pablo Francisco Saruwatari-Zavala,Garbiñe Genomic sovereignty or the enemy within
description	Genomic sovereignty is a concept that has become very popular among developing countries such as India, China, South Africa and Mexico. This concept is a response to developed countries that have taken advantage of those countries and researchers who don't have the means for protecting their own biogenetic resources. In this article we argue that genomic sovereignty is not about the others extracting and exploiting local human genetic resources, but developing and implementing the ethical, legal and administrative tools, based on transparency, openness and equal access to biological material, in order to build up a robust research networks. Being biological samples a scarce and valuable good, we conclude that controlling the access to this resource by means of the law, without a well implemented biobanking system and a clear scientific policy may lead to a situation where asymmetric relations are generated among research groups of the very same developing country. We would advice to those countries pretending to protect their biological samples and data from the outside, before developing laws against possible intrusions, they need to design strategies to promote equal and fair access to both resources paramount to biomedical research.
author	Siqueiros-García,Jesús Mario Oliva-Sánchez,Pablo Francisco Saruwatari-Zavala,Garbiñe
author_facet	Siqueiros-García,Jesús Mario Oliva-Sánchez,Pablo Francisco Saruwatari-Zavala,Garbiñe
author_sort	Siqueiros-García,Jesús Mario
title	Genomic sovereignty or the enemy within
title_short	Genomic sovereignty or the enemy within
title_full	Genomic sovereignty or the enemy within
title_fullStr	Genomic sovereignty or the enemy within
title_full_unstemmed	Genomic sovereignty or the enemy within
title_sort	genomic sovereignty or the enemy within
publisher	Centro Interdisciplinario de Estudios en Bioética, Universidad de Chile
publishDate	2013
url	http://www.scielo.cl/scielo.php?script=sci_arttext&pid=S1726-569X2013000200011
work_keys_str_mv	AT siqueirosgarciajesusmario genomicsovereigntyortheenemywithin AT olivasanchezpablofrancisco genomicsovereigntyortheenemywithin AT saruwatarizavalagarbine genomicsovereigntyortheenemywithin
_version_	1714207355039645696

Genomic sovereignty or the enemy within

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