Informed Consent for Case Reports - an Ethical Perspective

Abstract: The case report is a special type of scientific publication that focuses on a single patient, raising problems of confidentiality, as the exposure of the intimacy may facilitate identification of the participants. The legitimacy for the public disclosure derives from the informed consent,...

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Autores principales:	Santos,Paulo, Hespanhol,Alberto
Lenguaje:	English
Publicado:	Centro Interdisciplinario de Estudios en Bioética, Universidad de Chile 2017
Materias:	autonomy confidentiality education for health care professionals ethics committees family
Acceso en línea:	http://www.scielo.cl/scielo.php?script=sci_arttext&pid=S1726-569X2017000200271
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spelling	oai:scielo:S1726-569X20170002002712018-03-13Informed Consent for Case Reports - an Ethical PerspectiveSantos,PauloHespanhol,Alberto autonomy confidentiality education for health care professionals ethics committees family Abstract: The case report is a special type of scientific publication that focuses on a single patient, raising problems of confidentiality, as the exposure of the intimacy may facilitate identification of the participants. The legitimacy for the public disclosure derives from the informed consent, ensuring the preservation of patients’ self-determination. In this article, we discuss aspects of autonomy as basic ethical principle, framing under the Portuguese Law. In the case reports, as in any clinical investigation, the will of the patient should prevail over the interests of research and researchers, even when he is unable to consent, like the minors, the disabled or the deceased, enforcing the legal rules and addressing to the active involvement of the guardians and the relatives.info:eu-repo/semantics/openAccessCentro Interdisciplinario de Estudios en Bioética, Universidad de ChileActa bioethica v.23 n.2 20172017-07-01text/htmlhttp://www.scielo.cl/scielo.php?script=sci_arttext&pid=S1726-569X2017000200271en10.4067/S1726-569X2017000200271
institution	Scielo Chile
collection	Scielo Chile
language	English
topic	autonomy confidentiality education for health care professionals ethics committees family
spellingShingle	autonomy confidentiality education for health care professionals ethics committees family Santos,Paulo Hespanhol,Alberto Informed Consent for Case Reports - an Ethical Perspective
description	Abstract: The case report is a special type of scientific publication that focuses on a single patient, raising problems of confidentiality, as the exposure of the intimacy may facilitate identification of the participants. The legitimacy for the public disclosure derives from the informed consent, ensuring the preservation of patients’ self-determination. In this article, we discuss aspects of autonomy as basic ethical principle, framing under the Portuguese Law. In the case reports, as in any clinical investigation, the will of the patient should prevail over the interests of research and researchers, even when he is unable to consent, like the minors, the disabled or the deceased, enforcing the legal rules and addressing to the active involvement of the guardians and the relatives.
author	Santos,Paulo Hespanhol,Alberto
author_facet	Santos,Paulo Hespanhol,Alberto
author_sort	Santos,Paulo
title	Informed Consent for Case Reports - an Ethical Perspective
title_short	Informed Consent for Case Reports - an Ethical Perspective
title_full	Informed Consent for Case Reports - an Ethical Perspective
title_fullStr	Informed Consent for Case Reports - an Ethical Perspective
title_full_unstemmed	Informed Consent for Case Reports - an Ethical Perspective
title_sort	informed consent for case reports - an ethical perspective
publisher	Centro Interdisciplinario de Estudios en Bioética, Universidad de Chile
publishDate	2017
url	http://www.scielo.cl/scielo.php?script=sci_arttext&pid=S1726-569X2017000200271
work_keys_str_mv	AT santospaulo informedconsentforcasereportsanethicalperspective AT hespanholalberto informedconsentforcasereportsanethicalperspective
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Informed Consent for Case Reports - an Ethical Perspective

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