Is SF-12 a valid and reliable measurement of health-related quality of life among adults with Marfan syndrome? A confirmatory study.

por Nathasha Udugampolage, Rosario Caruso, Mariangela Panetta, Edward Callus, Federica Dellafiore, Arianna Magon, Susan Marelli, Alessandro Pini
Publicado 2021

Pain in adults with congenital heart disease - An international perspective

por Allison Leibold, Erin Eichler, Sukyung Chung, Philip Moons, Adrienne H. Kovacs, Koen Luyckx, Silke Apers, Corina Thomet, Werner Budts, Junko Enomoto, Maayke A. Sluman, Jou-Kou Wang, Jamie L. Jackson, Paul Khairy, Stephen C. Cook, Shanthi Chidambarathanu, Luis Alday, Erwin Oechslin, Katrine Eriksen, Mikael Dellborg, Malin Berghammer, Bengt Johansson, Andrew S. Mackie, Samuel Menahem, Maryanne Caruana, Gruschen Veldtman, Alexandra Soufi, Kamila White, Edward Callus, Shelby Kutty, Susan M. Fernandes
Publicado 2021