Quality of life and mental health of children with rare congenital surgical diseases and their parents during the COVID-19 pandemic

por Mareike Fuerboeter, Johannes Boettcher, Claus Barkmann, Holger Zapf, Rojin Nazarian, Silke Wiegand-Grefe, Konrad Reinshagen, Michael Boettcher
Publicado 2021

Rare pediatric diseases and pathways to psychosocial care: a qualitative interview study with professional experts working with affected families in Germany

por Stefanie Witt, Kaja Kristensen, Silke Wiegand-Grefe, Johannes Boettcher, Janika Bloemeke, Christina Wingartz, Monika Bullinger, Julia Quitmann, und die CARE-FAM-NET Studiengruppe
Publicado 2021