A genetic researcher’s devil’s dilemma: Warn relatives about their genetic risk or respect confidentiality agreements with research participants?

Abstract Background With advances in sequencing technologies, increasing numbers of people are being informed about a genetic disease identified in their family. In current practice, probands (the first person in a family in whom a genetic predisposition is identified) are asked to inform at-risk re...

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Bibliographic Details
Main Authors: Lieke M. van den Heuvel, Els L. M. Maeckelberghe, M. Corrette Ploem, Imke Christiaans
Format: article
Language:EN
Published: BMC 2021
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Online Access:https://doaj.org/article/2204856fd7a4465db72fe6e4d2bdf288
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