A genetic researcher’s devil’s dilemma: Warn relatives about their genetic risk or respect confidentiality agreements with research participants?
Abstract Background With advances in sequencing technologies, increasing numbers of people are being informed about a genetic disease identified in their family. In current practice, probands (the first person in a family in whom a genetic predisposition is identified) are asked to inform at-risk re...
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Autores principales: | Lieke M. van den Heuvel, Els L. M. Maeckelberghe, M. Corrette Ploem, Imke Christiaans |
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Formato: | article |
Lenguaje: | EN |
Publicado: |
BMC
2021
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Materias: | |
Acceso en línea: | https://doaj.org/article/2204856fd7a4465db72fe6e4d2bdf288 |
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