Ethical Considerations Regarding Classroom Use of Personal Genomic Information

Rapidly decreasing costs of genetic technologies—especially next-generation sequencing—and intensifying need for a clinical workforce trained in genomic medicine have increased interest in having students use personal genomic information to motivate and enhance genomics education. Numerous ethical i...

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Autores principales: Lisa S. Parker, Robin Grubs
Formato: article
Lenguaje:EN
Publicado: American Society for Microbiology 2014
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Acceso en línea:https://doaj.org/article/6120391a4cef4a1992fc202f50a0a48b
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spelling oai:doaj.org-article:6120391a4cef4a1992fc202f50a0a48b2021-11-15T15:15:36ZEthical Considerations Regarding Classroom Use of Personal Genomic Information10.1128/jmbe.v15i2.8561935-78851935-7877https://doaj.org/article/6120391a4cef4a1992fc202f50a0a48b2014-12-01T00:00:00Zhttps://journals.asm.org/doi/10.1128/jmbe.v15i2.856https://doaj.org/toc/1935-7877https://doaj.org/toc/1935-7885Rapidly decreasing costs of genetic technologies—especially next-generation sequencing—and intensifying need for a clinical workforce trained in genomic medicine have increased interest in having students use personal genomic information to motivate and enhance genomics education. Numerous ethical issues attend classroom/pedagogical use of students’ personal genomic information, including their informed decision to participate, pressures to participate, privacy concerns, and psychosocial sequelae of learning genomic information. This paper addresses these issues, advocates explicit discussion of these issues to cultivate students’ ethical reasoning skills, suggests ways to mitigate potential harms, and recommends collection of ethically relevant data regarding pedagogical use of personal genomic information.Lisa S. ParkerRobin GrubsAmerican Society for MicrobiologyarticleSpecial aspects of educationLC8-6691Biology (General)QH301-705.5ENJournal of Microbiology & Biology Education, Vol 15, Iss 2, Pp 191-196 (2014)
institution DOAJ
collection DOAJ
language EN
topic Special aspects of education
LC8-6691
Biology (General)
QH301-705.5
spellingShingle Special aspects of education
LC8-6691
Biology (General)
QH301-705.5
Lisa S. Parker
Robin Grubs
Ethical Considerations Regarding Classroom Use of Personal Genomic Information
description Rapidly decreasing costs of genetic technologies—especially next-generation sequencing—and intensifying need for a clinical workforce trained in genomic medicine have increased interest in having students use personal genomic information to motivate and enhance genomics education. Numerous ethical issues attend classroom/pedagogical use of students’ personal genomic information, including their informed decision to participate, pressures to participate, privacy concerns, and psychosocial sequelae of learning genomic information. This paper addresses these issues, advocates explicit discussion of these issues to cultivate students’ ethical reasoning skills, suggests ways to mitigate potential harms, and recommends collection of ethically relevant data regarding pedagogical use of personal genomic information.
format article
author Lisa S. Parker
Robin Grubs
author_facet Lisa S. Parker
Robin Grubs
author_sort Lisa S. Parker
title Ethical Considerations Regarding Classroom Use of Personal Genomic Information
title_short Ethical Considerations Regarding Classroom Use of Personal Genomic Information
title_full Ethical Considerations Regarding Classroom Use of Personal Genomic Information
title_fullStr Ethical Considerations Regarding Classroom Use of Personal Genomic Information
title_full_unstemmed Ethical Considerations Regarding Classroom Use of Personal Genomic Information
title_sort ethical considerations regarding classroom use of personal genomic information
publisher American Society for Microbiology
publishDate 2014
url https://doaj.org/article/6120391a4cef4a1992fc202f50a0a48b
work_keys_str_mv AT lisasparker ethicalconsiderationsregardingclassroomuseofpersonalgenomicinformation
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