A Descriptive Review of Global Real World Evidence Efforts to Advance Drug Discovery and Clinical Development in Amyotrophic Lateral Sclerosis

A Descriptive Review of Global Real World Evidence Efforts to Advance Drug Discovery and Clinical Development in Amyotrophic Lateral Sclerosis

Understanding patient clinical progression is a key gateway to planning effective clinical trials and ultimately enabling bringing treatments to patients in need. In a rare disease like amyotrophic lateral sclerosis (ALS), studies of disease natural history critically depend on collaboration between...

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Autores principales: Suzanne F. Cook, Thomas Rhodes, Courtney Schlusser, Steve Han, Chao Chen, Neta Zach, Venkatesha Murthy, Shreya Davé
Formato: article
Lenguaje:EN
Publicado: Frontiers Media S.A. 2021
Materias:
amyotrophic lateral sclerosis
real-world data
rare disease
registries
biobanks
Neurology. Diseases of the nervous system
RC346-429
Acceso en línea:https://doaj.org/article/67fe608696cf4764bc9d225c3674bd2f
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https://doaj.org/article/67fe608696cf4764bc9d225c3674bd2f

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