Exploring peer mentoring in pediatric transition: Perspectives of different stakeholders about accompanying patients in gastroenterology

The literature identifies several issues in the pediatric transition, such as the lack of coordination between pediatric and adult settings and young patients who are not exercising independence in the self-management of their disease. The objective of this study is to explore the potential for a pe...

Descripción completa

Guardado en:

Detalles Bibliográficos
Autores principales:	Guillaume Dumais-Lévesque, Marie-Pascale Pomey
Formato:	article
Lenguaje:	EN
Publicado:	The Beryl Institute 2020
Materias:	patient engagement accompanying patient peer support pediatric transition qualitative methods quality of care action research quality improvement Medicine (General) R5-920 Public aspects of medicine RA1-1270
Acceso en línea:	https://doaj.org/article/7573cb6b0042479f91199e4b3ac2cde5
Etiquetas:	Agregar Etiqueta Sin Etiquetas, Sea el primero en etiquetar este registro!

id	oai:doaj.org-article:7573cb6b0042479f91199e4b3ac2cde5
record_format	dspace
spelling	oai:doaj.org-article:7573cb6b0042479f91199e4b3ac2cde52021-11-15T04:31:27ZExploring peer mentoring in pediatric transition: Perspectives of different stakeholders about accompanying patients in gastroenterology2372-0247https://doaj.org/article/7573cb6b0042479f91199e4b3ac2cde52020-11-01T00:00:00Zhttps://pxjournal.org/journal/vol7/iss3/10https://doaj.org/toc/2372-0247The literature identifies several issues in the pediatric transition, such as the lack of coordination between pediatric and adult settings and young patients who are not exercising independence in the self-management of their disease. The objective of this study is to explore the potential for a pediatric transition program in gastroenterology, introducing an accompanying patient program to support the transition. A qualitative case study was conducted, including semi-structured focus groups and individual interviews with each group involved in the pediatric transition between two centres in Quebec. A thematic analysis of the collected data was performed using QDA Miner v5.1. In addition to the barriers documented in the literature, such as patients’ poor knowledge of their disease, developmental immaturity and low level of independence, our analysis found that adolescents appear to be quite indifferent to their disease and to the transition. Once they are in an adult health centre, they develop an awareness of the disease’s impact on their lives and would appreciate having support from a peer. In contrast, parents experience considerable anxiety before this transition, and would like to be in contact with other parents. Professionals, for their part, are open to the idea of establishing a peer support program to fill certain gaps in how transfers are organized. One way to improve the transition, as suggested by our respondents, is to set up a peer support program that should evolve over time, being initially implemented for the parents and then for the young adults. <strong>Experience Framework</strong> This article is associated with the Patient, Family & Community Engagement lens of The Beryl Institute Experience Framework. (<a href="http://bit.ly/ExperienceFramework">http://bit.ly/ExperienceFramework</a>) <ul> <li><a href="https://www.theberylinstitute.org/page/PXSEARCH#resource-list-all/?view_28_page=1&view_28_filters=%5B%7B%22field%22%3A%22field_38%22%2C%22operator%22%3A%22in%22%2C%22value%22%3A%5B%22PXJ%20Article%22%5D%7D%2C%7B%22field%22%3A%22field_20%22%2C%22operator%22%3A%22is%22%2C%22value%22%3A%5B%22%22%5D%7D%2C%7B%22field%22%3A%22field_40%22%2C%22operator%22%3A%22is%22%2C%22value%22%3A%5B%22%22%2C%22Patient%2C%20Family%20%26%20Community%20Engagement%22%5D%7D%2C%7B%22field%22%3A%22field_41%22%2C%22operator%22%3A%22is%22%2C%22value%22%3A%5B%22%22%5D%7D%5D">Access other PXJ articles</a> related to this lens.</li> <li><a href="https://www.theberylinstitute.org/page/Ecosystem-PatientFamilyCommunityEngagement">Access other resources</a> related to this lens.</li> </ul>Guillaume Dumais-LévesqueMarie-Pascale PomeyThe Beryl Institutearticlepatient engagementaccompanying patientpeer supportpediatric transitionqualitative methodsquality of careaction researchquality improvementMedicine (General)R5-920Public aspects of medicineRA1-1270ENPatient Experience Journal (2020)
institution	DOAJ
collection	DOAJ
language	EN
topic	patient engagement accompanying patient peer support pediatric transition qualitative methods quality of care action research quality improvement Medicine (General) R5-920 Public aspects of medicine RA1-1270
spellingShingle	patient engagement accompanying patient peer support pediatric transition qualitative methods quality of care action research quality improvement Medicine (General) R5-920 Public aspects of medicine RA1-1270 Guillaume Dumais-Lévesque Marie-Pascale Pomey Exploring peer mentoring in pediatric transition: Perspectives of different stakeholders about accompanying patients in gastroenterology
description	The literature identifies several issues in the pediatric transition, such as the lack of coordination between pediatric and adult settings and young patients who are not exercising independence in the self-management of their disease. The objective of this study is to explore the potential for a pediatric transition program in gastroenterology, introducing an accompanying patient program to support the transition. A qualitative case study was conducted, including semi-structured focus groups and individual interviews with each group involved in the pediatric transition between two centres in Quebec. A thematic analysis of the collected data was performed using QDA Miner v5.1. In addition to the barriers documented in the literature, such as patients’ poor knowledge of their disease, developmental immaturity and low level of independence, our analysis found that adolescents appear to be quite indifferent to their disease and to the transition. Once they are in an adult health centre, they develop an awareness of the disease’s impact on their lives and would appreciate having support from a peer. In contrast, parents experience considerable anxiety before this transition, and would like to be in contact with other parents. Professionals, for their part, are open to the idea of establishing a peer support program to fill certain gaps in how transfers are organized. One way to improve the transition, as suggested by our respondents, is to set up a peer support program that should evolve over time, being initially implemented for the parents and then for the young adults. <strong>Experience Framework</strong> This article is associated with the Patient, Family & Community Engagement lens of The Beryl Institute Experience Framework. (<a href="http://bit.ly/ExperienceFramework">http://bit.ly/ExperienceFramework</a>) <ul> <li><a href="https://www.theberylinstitute.org/page/PXSEARCH#resource-list-all/?view_28_page=1&view_28_filters=%5B%7B%22field%22%3A%22field_38%22%2C%22operator%22%3A%22in%22%2C%22value%22%3A%5B%22PXJ%20Article%22%5D%7D%2C%7B%22field%22%3A%22field_20%22%2C%22operator%22%3A%22is%22%2C%22value%22%3A%5B%22%22%5D%7D%2C%7B%22field%22%3A%22field_40%22%2C%22operator%22%3A%22is%22%2C%22value%22%3A%5B%22%22%2C%22Patient%2C%20Family%20%26%20Community%20Engagement%22%5D%7D%2C%7B%22field%22%3A%22field_41%22%2C%22operator%22%3A%22is%22%2C%22value%22%3A%5B%22%22%5D%7D%5D">Access other PXJ articles</a> related to this lens.</li> <li><a href="https://www.theberylinstitute.org/page/Ecosystem-PatientFamilyCommunityEngagement">Access other resources</a> related to this lens.</li> </ul>
format	article
author	Guillaume Dumais-Lévesque Marie-Pascale Pomey
author_facet	Guillaume Dumais-Lévesque Marie-Pascale Pomey
author_sort	Guillaume Dumais-Lévesque
title	Exploring peer mentoring in pediatric transition: Perspectives of different stakeholders about accompanying patients in gastroenterology
title_short	Exploring peer mentoring in pediatric transition: Perspectives of different stakeholders about accompanying patients in gastroenterology
title_full	Exploring peer mentoring in pediatric transition: Perspectives of different stakeholders about accompanying patients in gastroenterology
title_fullStr	Exploring peer mentoring in pediatric transition: Perspectives of different stakeholders about accompanying patients in gastroenterology
title_full_unstemmed	Exploring peer mentoring in pediatric transition: Perspectives of different stakeholders about accompanying patients in gastroenterology
title_sort	exploring peer mentoring in pediatric transition: perspectives of different stakeholders about accompanying patients in gastroenterology
publisher	The Beryl Institute
publishDate	2020
url	https://doaj.org/article/7573cb6b0042479f91199e4b3ac2cde5
work_keys_str_mv	AT guillaumedumaislevesque exploringpeermentoringinpediatrictransitionperspectivesofdifferentstakeholdersaboutaccompanyingpatientsingastroenterology AT mariepascalepomey exploringpeermentoringinpediatrictransitionperspectivesofdifferentstakeholdersaboutaccompanyingpatientsingastroenterology
_version_	1718428813710327808

Exploring peer mentoring in pediatric transition: Perspectives of different stakeholders about accompanying patients in gastroenterology

Ejemplares similares