Development of a Pathway for Multidisciplinary Neurodevelopmental Assessment and Diagnosis in Children and Young People

There is a variable standard of access to quality neurodevelopmental assessment and diagnosis. People may have negative experiences, encountering lengthy waiting times, and inconsistent practices. Practitioners need guidance on standards and practices for assessment and diagnosis matched to new ways...

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Autores principales:	Marion Rutherford, Donald Maciver, Lorna Johnston, Susan Prior, Kirsty Forsyth
Formato:	article
Lenguaje:	EN
Publicado:	MDPI AG 2021
Materias:	guideline autism neurodevelopmental pathway assessment diagnosis Pediatrics RJ1-570
Acceso en línea:	https://doaj.org/article/83869ee69e7b439ab92361b41fe5d306
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spelling	oai:doaj.org-article:83869ee69e7b439ab92361b41fe5d3062021-11-25T17:14:43ZDevelopment of a Pathway for Multidisciplinary Neurodevelopmental Assessment and Diagnosis in Children and Young People10.3390/children81110332227-9067https://doaj.org/article/83869ee69e7b439ab92361b41fe5d3062021-11-01T00:00:00Zhttps://www.mdpi.com/2227-9067/8/11/1033https://doaj.org/toc/2227-9067There is a variable standard of access to quality neurodevelopmental assessment and diagnosis. People may have negative experiences, encountering lengthy waiting times, and inconsistent practices. Practitioners need guidance on standards and practices for assessment and diagnosis matched to new ways of working. In this paper, we present a new pathway and recommendations for multidisciplinary neurodevelopmental assessment and diagnosis for children and young people (<19 years), developed by the Scottish Government funded National Autism Implementation Team (NAIT). Our research used the Medical Research Council guidance for the development of complex interventions and included several iterative stages. Stage 1: <i>n</i> = 44 stakeholders attended an event on developing new practices for diagnosis and assessment. Stage 2: a literature synthesis was completed by the research team of clinical guidelines and diagnosis and assessment tools. Stage 3: an event with <i>n</i> = 127 stakeholders included discussion and debate of the data from stages 1 and 2. Recommendations and a draft pathway were written. Stage 4: successive drafts of recommendations and the pathway documentation were circulated among an advisory group, including multidisciplinary clinical experts and people with lived experience, until the final pathway was agreed upon. The finalised pathway includes guidance on terminology, assessment, diagnosis, triage, time standards and engagement of people with lived experience. The new pathway has been adopted by the Scottish Government. The pathway and associated documentation are freely available online for use by others.Marion RutherfordDonald MaciverLorna JohnstonSusan PriorKirsty ForsythMDPI AGarticleguidelineautismneurodevelopmentalpathwayassessmentdiagnosisPediatricsRJ1-570ENChildren, Vol 8, Iss 1033, p 1033 (2021)
institution	DOAJ
collection	DOAJ
language	EN
topic	guideline autism neurodevelopmental pathway assessment diagnosis Pediatrics RJ1-570
spellingShingle	guideline autism neurodevelopmental pathway assessment diagnosis Pediatrics RJ1-570 Marion Rutherford Donald Maciver Lorna Johnston Susan Prior Kirsty Forsyth Development of a Pathway for Multidisciplinary Neurodevelopmental Assessment and Diagnosis in Children and Young People
description	There is a variable standard of access to quality neurodevelopmental assessment and diagnosis. People may have negative experiences, encountering lengthy waiting times, and inconsistent practices. Practitioners need guidance on standards and practices for assessment and diagnosis matched to new ways of working. In this paper, we present a new pathway and recommendations for multidisciplinary neurodevelopmental assessment and diagnosis for children and young people (<19 years), developed by the Scottish Government funded National Autism Implementation Team (NAIT). Our research used the Medical Research Council guidance for the development of complex interventions and included several iterative stages. Stage 1: <i>n</i> = 44 stakeholders attended an event on developing new practices for diagnosis and assessment. Stage 2: a literature synthesis was completed by the research team of clinical guidelines and diagnosis and assessment tools. Stage 3: an event with <i>n</i> = 127 stakeholders included discussion and debate of the data from stages 1 and 2. Recommendations and a draft pathway were written. Stage 4: successive drafts of recommendations and the pathway documentation were circulated among an advisory group, including multidisciplinary clinical experts and people with lived experience, until the final pathway was agreed upon. The finalised pathway includes guidance on terminology, assessment, diagnosis, triage, time standards and engagement of people with lived experience. The new pathway has been adopted by the Scottish Government. The pathway and associated documentation are freely available online for use by others.
format	article
author	Marion Rutherford Donald Maciver Lorna Johnston Susan Prior Kirsty Forsyth
author_facet	Marion Rutherford Donald Maciver Lorna Johnston Susan Prior Kirsty Forsyth
author_sort	Marion Rutherford
title	Development of a Pathway for Multidisciplinary Neurodevelopmental Assessment and Diagnosis in Children and Young People
title_short	Development of a Pathway for Multidisciplinary Neurodevelopmental Assessment and Diagnosis in Children and Young People
title_full	Development of a Pathway for Multidisciplinary Neurodevelopmental Assessment and Diagnosis in Children and Young People
title_fullStr	Development of a Pathway for Multidisciplinary Neurodevelopmental Assessment and Diagnosis in Children and Young People
title_full_unstemmed	Development of a Pathway for Multidisciplinary Neurodevelopmental Assessment and Diagnosis in Children and Young People
title_sort	development of a pathway for multidisciplinary neurodevelopmental assessment and diagnosis in children and young people
publisher	MDPI AG
publishDate	2021
url	https://doaj.org/article/83869ee69e7b439ab92361b41fe5d306
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Development of a Pathway for Multidisciplinary Neurodevelopmental Assessment and Diagnosis in Children and Young People

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