The PID Principles of Care: Where Are We Now? A Global Status Report Based on the PID Life Index

The PID Principles of Care: Where Are We Now? A Global Status Report Based on the PID Life Index

A global gold standard framework for primary immunodeficiency (PID) care, structured around six principles, was published in 2014. To measure the implementation status of these principles IPOPI developed the PID Life Index in 2020, an interactive tool aggregating national PID data. This development...

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Autores principales: Julia Nordin, Leire Solís, Johan Prévot, Nizar Mahlaoui, Helen Chapel, Silvia Sánchez-Ramón, Adli Ali, John W. Seymour, Martine Pergent
Formato: article
Lenguaje:EN
Publicado: Frontiers Media S.A. 2021
Materias:
primary immunodeficiency
global PID data
diagnosis
treatment
universal health care
specialised centres
Immunologic diseases. Allergy
RC581-607
Acceso en línea:https://doaj.org/article/aed309fed69f471d8af0e0e399a10b01
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https://doaj.org/article/aed309fed69f471d8af0e0e399a10b01

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