Engagement of patients with scleroderma to revise an internet self-management program

Engagement of patients with scleroderma to revise an internet self-management program

Systemic sclerosis (SSc) or scleroderma is a rare connective tissue disease. Many people do not have access to education programs. A self-management program was developed several years ago based on the literature and input from people with SSc. However, new therapies and treatment options have been...

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Bibliographic Details
Main Authors: Janet Poole, Sharon Newbill, Jennifer Serrano, Dana Rosson, Josephine Battyany, Laura Dyas, Luke Evnin, Dennis Raisch, Cynthia Maxwell, Mary Alore, Saville Kellner, Pedro Cuencas, Richard Silver, Dinesh Khanna
Format: article
Language:EN
Published: The Beryl Institute 2019
Subjects:
patient engagement
patient experience
systemic sclerosis
self-management
focus groups
Medicine (General)
R5-920
Public aspects of medicine
RA1-1270
Online Access:https://doaj.org/article/ccc7efb6515a4c23a76b0e1d15fcb7ec
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https://doaj.org/article/ccc7efb6515a4c23a76b0e1d15fcb7ec

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